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Nejnovější mezinárodní publikace o paliativní péči
- Autor: J J CuthbertCONCLUSIONS: Acetazolamide has a significant "chloride-sparing" effect in patients given high-dose IV furosemide. However, ACZ did not significantly increase diuresis, and side effects from oral […]
- Autor: Diane BoinonCONCLUSION: ICBT-I with phone-based guidance showed satisfactory rates of adherence and insomnia remission. Implementing the program effectively requires considering patients' profiles.
- Autor: Melanie JoshiCONCLUSION: In this clinical trial involving glioblastoma patients, a high level of motivation among the study participants could be reached, as reflected by low protocol […]
- Autor: Sandhya SeshadriBackgroundCarers of Persons with Parkinson's disease (PwP) have significant palliative care needs that are not adequately addressed in current models of care. To provide holistic […]
- Autor: Nivetha SaravananCONCLUSIONS: Despite broad support for PC in advanced ESLD, integration remains limited by role uncertainty, training gaps, and stigma. Specialty-specific discomfort with holistic assessment and […]
- Autor: Carla Ida RipamontiCONCLUSION: Clinicians worldwide affirm the importance of spiritual care, yet systematic provision is limited. Embedding role-appropriate competencies and integrating screening into routine workflows are needed […]
- Autor: Danielle H LlanezaCONCLUSION: Interventions focused on how community-based palliative care is explained to patients and caregivers are in the early stages of development. Future research should prioritize […]
- Autor: Clodagh ScannellCONCLUSION: GLIM-diagnosed malnutrition, particularly when incorporating CT-derived muscle mass, is common and strongly predicts poor survival across treatment intents. CT-based assessment identifies patients with muscle […]
- Autor: Elizabeth Colquhoun-FlanneryCONCLUSION: Transitions to comfort-focused care in acute hospitals are shaped by denial, task orientation, prognostic uncertainty and hierarchical decision-making, which collectively delay recognition of dying. […]
- Autor: Federica CaminitiCONCLUSION: Midwives hold professional, relational, and educational competencies that position them ideally to contribute to perinatal palliative care. However, the lack of formal recognition and […]
- Autor: Amanda Pifano Soares FerreiraPalliative care is, according to the World Health Organization (WHO), "a global ethical responsibility" and crucial to person-centered healthcare, for the relief of physical and […]
- Autor: Marte Fleur AntonidesBACKGROUND: In Dutch euthanasia practice, the relationship between healthcare professionals, patients, and, when present, the patient's close circle plays an important role. However, neither the […]
- Autor: Claire Elizabeth StewartCONCLUSIONS: Language and framing strongly shape perceptions of PPC and influence referral behaviour. Consistent use of evidence-informed framing strategies can help clinicians communicate more clearly […]
- Autor: Elaine ColeCONCLUSION: This national snapshot demonstrates limited and variable use of treatment escalation planning with low rates of recorded palliative and EoLC need discussions in older […]
- Autor: M DampsThe futile therapy protocol (FTP) is a formal document supporting decisions to withdraw or withhold certain forms of treatment owing to their futility, with the […]
- Autor: Nia EdwardsNo abstract
- Autor: Fatemeh RezaeiThis systematic review, conducted per PRISMA 2020 guidelines, synthesizes evidence on early pediatric palliative care (PPC) versus late or no PPC in children and young […]
- Autor: Robert Thompson StoneInfantile Krabbe disease (IKD) is a rapidly progressive leukodystrophy for which hematopoietic stem cell transplantation (HCT) offers the only disease-modifying treatment. HCT must occur presymptomatically, […]
- Autor: Timothy S SannesNone.
- Autor: Amanda Pifano Soares FerreiraPalliative care is, according to the World Health Organization (WHO), "a global ethical responsibility" and crucial to person-centered healthcare, for the relief of physical and […]
- Autor: Sarah WrightCONCLUSION: Systematic longitudinal HMH evaluation is feasible in pediatric advanced cancer. HMH remains highly prevalent over time, with approximately 40% of families reporting HMH at […]
- Autor: Megumi LimCONCLUSIONS: Families of children with brain tumours shoulder substantial and enduring financial burdens, with limited offset from existing support schemes.
- Autor: Pilar Anton-MartinCONCLUSIONS: The removal of right atrial lines at discharge seems to be feasible and safe in the postoperative care of pediatric cardiac patients, including those […]
- Autor: Stefanie StoberCONCLUSIONS: These findings highlight a global need to integrate early, family-centered PPC within pediatric oncology inpatient care. Health systems should prioritize staff training, establish adaptable […]
- Autor: Amanda Pifano Soares FerreiraPalliative care is, according to the World Health Organization (WHO), "a global ethical responsibility" and crucial to person-centered healthcare, for the relief of physical and […]
- Autor: Pilar Anton-MartinCONCLUSIONS: The removal of right atrial lines at discharge seems to be feasible and safe in the postoperative care of pediatric cardiac patients, including those […]
- Autor: Stefanie StoberCONCLUSIONS: These findings highlight a global need to integrate early, family-centered PPC within pediatric oncology inpatient care. Health systems should prioritize staff training, establish adaptable […]
- Autor: Claire Elizabeth StewartCONCLUSIONS: Language and framing strongly shape perceptions of PPC and influence referral behaviour. Consistent use of evidence-informed framing strategies can help clinicians communicate more clearly […]
- Autor: M DampsThe futile therapy protocol (FTP) is a formal document supporting decisions to withdraw or withhold certain forms of treatment owing to their futility, with the […]
- Autor: Mariangela RosaNo abstract
- Autor: Biplav GhimireThere is a critical and persistent unmet need for pediatric palliative care (PPC) services in low- and middle-income countries (LMICs), with the lack of specialized […]
- Autor: Jaleh ZandNo abstract
- Autor: Federica CaminitiCONCLUSION: Midwives hold professional, relational, and educational competencies that position them ideally to contribute to perinatal palliative care. However, the lack of formal recognition and […]
- Autor: Pru HolderThe project aimed to explore the psychosocial impact on parents of receiving a false-positive outcome following a positive newborn bloodspot screening (NBS) result for SCID […]
- Autor: Biplav GhimireThere is a critical and persistent unmet need for pediatric palliative care (PPC) services in low- and middle-income countries (LMICs), with the lack of specialized […]
- Autor: Christian BrickmannCONCLUSIONS: Most neonates with cCHD can be safely stabilized at a Level-III perinatal center prior to transfer without the need for immediate surgical cardiac intervention. […]
- Autor: Emilio Rodriguez-RuizCONCLUSIONS: Without real-time feedback, intensive care unit clinicians appear unable to deliver optimal ventilation when performing usual-care standard manual ventilation.
- Autor: Lin ChenCONCLUSION: This case reveals the importance of early recognition and genetic diagnosis of XLCNM, particularly in neonates with unexplained hypotonia and a suggestive family history. […]
- Autor: Sophie BertaudThere is a growing recognition that perinatal palliative care is appropriate whenever there is uncertainty about a baby's survival outcome. Many aspects of this care […]
- Autor: Maddy FrenchCONCLUSIONS: Disparities in the use of children and young people's palliative care services were demonstrated. Future research should focus on developing measures of complex need […]
- Autor: Federica CaminitiCONCLUSION: Midwives hold professional, relational, and educational competencies that position them ideally to contribute to perinatal palliative care. However, the lack of formal recognition and […]
- Autor: Pru HolderThe project aimed to explore the psychosocial impact on parents of receiving a false-positive outcome following a positive newborn bloodspot screening (NBS) result for SCID […]
- Autor: Biplav GhimireThere is a critical and persistent unmet need for pediatric palliative care (PPC) services in low- and middle-income countries (LMICs), with the lack of specialized […]
- Autor: Christian BrickmannCONCLUSIONS: Most neonates with cCHD can be safely stabilized at a Level-III perinatal center prior to transfer without the need for immediate surgical cardiac intervention. […]
- Autor: Hayley RedmanNo abstract
- Autor: Lin ChenCONCLUSION: This case reveals the importance of early recognition and genetic diagnosis of XLCNM, particularly in neonates with unexplained hypotonia and a suggestive family history. […]
- Autor: Maddy FrenchCONCLUSIONS: Disparities in the use of children and young people's palliative care services were demonstrated. Future research should focus on developing measures of complex need […]
- Autor: Stephanie A KraftNo abstract
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.