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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Jos M LatourA human-centred partnership in the intensive care unit (ICU) aims to integrate person-centred care, communication, emotional support, equity, and collaboration into ICU environments. The European […]
- Autor: K Smita ReddyCONCLUSION: In simulated difficult airways, VL reduced upper limb muscle activity compared with DL. Nevertheless, perceived workload was higher with King Vision VL than with […]
- Autor: Maria Aurora MendesCONCLUSION: The European Portuguese PaCKS is now available and provides reliable and valid data on palliative care knowledge in COPD and ILD.
- Autor: Martin EichlerCONCLUSION: In routine outpatient oncology care, high screening-defined supportive care needs did not translate into proportional utilization of nutritional and exercise counseling. Multidisciplinary tumor board […]
- Autor: Dion SmythThis article explores the health implications and therapeutic significance of tea drinking, considering its role in health promotion, community nursing and palliative care, where a […]
- Autor: Eva KornemannEmergency medical services and emergency departments face rising demand, population ageing and limited alternatives to hospital-based acute care. Prevention is therefore relevant across the emergency […]
- Autor: Qiao-Juan GuoPatients with de novo metastatic nasopharyngeal carcinoma were historically deemed incurable and treated with palliative intent. Emergence of potent systemic therapy in combination with local […]
- Autor: Trine Toft SørensenCONCLUSION: These findings underscore the need for cancer prevention and early detection, particularly among younger people and those with mild intellectual disability.
- Autor: Oonjee OhBACKGROUND AND OBJECTIVES: Tools powered by artificial intelligence (AI) are reshaping many aspects of dementia care, and end-of-life caregiving for persons with dementia may not […]
- Autor: Vered CohenCONCLUSION: The work presented here identifies a novel cannabinoid that modulates ERα signaling and enhances the antitumor efficacy of SERMs. The findings suggests that co-therapy […]
- Autor: Kaoutar DanaouiHydranencephaly is a rare, fatal congenital brain malformation characterized by near-complete absence of cerebral hemispheres with preservation of posterior fossa structures. We report a male […]
- Autor: Wei Jing FongCONCLUSION: SI was associated with greater postoperative healthcare utilisation and higher gross inpatient bill size. The findings highlight the burden of SI in Singapore and […]
- Autor: Aaron NeginBACKGROUND: Treatment of non-small cell lung cancer (NSCLC) has evolved dramatically over the past decade with the advent of widespread genetic testing, immunotherapy, and targeted […]
- Autor: Haojian ZhaiCONCLUSION: Combined aromatherapy and music or sound showed the most consistent reductions in anxiety or distress in pediatric dentistry, MRI examinations, nursing examinations or skills […]
- Autor: Maximiliane LenkCONCLUSION: This case illustrates the clinical challenges associated with recurrent and metastatic FATWO and underscores the potential value of comprehensive molecular profiling in rare gynecologic […]
- Autor: Nicola TheisUltrasound is increasingly used in neurological rehabilitation, most visibly to improve the accuracy and safety of botulinum toxin (BoNT) and phenol administration for spasticity. However, […]
- Autor: Rawad RihaniCONCLUSIONS: Children evacuated from Gaza presented with advanced disease, diagnostic discordance, malnutrition, and substantial psychosocial burden, reflecting the clinical consequences of conflict-related disruption of healthcare. […]
- Autor: Haojian ZhaiCONCLUSION: Combined aromatherapy and music or sound showed the most consistent reductions in anxiety or distress in pediatric dentistry, MRI examinations, nursing examinations or skills […]
- Autor: Tamryn F FowlerCONCLUSIONS: Clinical trial participation remains low, particularly among autologous HSCT recipients, younger adults, and patients with specific diagnoses. Findings highlight the need to broaden trial […]
- Autor: Srishruthi ThirumalaiBereavement is among life's most stressful events, and a minority of mourners develop prolonged and disabling grief. Biological markers have been proposed as signals of […]
- Autor: Raquel Carvalho de SousaCONCLUSIONS: In this cohort, LSTL was the most frequent end-of-life pathway among children with pre-existing neurologic disorders. Decisions were often documented before terminal deterioration and […]
- Autor: Marije BrouwerCONCLUSION: Parents and physicians understood suffering in seriously ill children as multidimensional, context-dependent, and not directly inferable from symptoms or functional limitations alone. Assessment should […]
- Autor: Tetyana KendzerskaBACKGROUND: Non-invasive ventilation (NIV) adherence is critical to its effectiveness, yet no standardized pediatric definition of "optimal" adherence exists, and population-level data are scarce.
- Autor: Beatriz Rodrigues-TiagoAdvances in cystic fibrosis care, particularly highly effective cystic fibrosis transmembrane conductance regulator modulator therapies, have transformed disease trajectories for many children and adolescents, improving […]
- Autor: Rawad RihaniCONCLUSIONS: Children evacuated from Gaza presented with advanced disease, diagnostic discordance, malnutrition, and substantial psychosocial burden, reflecting the clinical consequences of conflict-related disruption of healthcare. […]
- Autor: Haojian ZhaiCONCLUSION: Combined aromatherapy and music or sound showed the most consistent reductions in anxiety or distress in pediatric dentistry, MRI examinations, nursing examinations or skills […]
- Autor: Srishruthi ThirumalaiBereavement is among life's most stressful events, and a minority of mourners develop prolonged and disabling grief. Biological markers have been proposed as signals of […]
- Autor: Marije BrouwerCONCLUSION: Parents and physicians understood suffering in seriously ill children as multidimensional, context-dependent, and not directly inferable from symptoms or functional limitations alone. Assessment should […]
- Autor: Tetyana KendzerskaBACKGROUND: Non-invasive ventilation (NIV) adherence is critical to its effectiveness, yet no standardized pediatric definition of "optimal" adherence exists, and population-level data are scarce.
- Autor: Yu NamikataCONCLUSIONS: Congenital laryngotracheoesophageal cleft and tracheal stenosis, a rare and mostly fatal anomaly, can be diagnosed in neonates using intubation videoendoscopy. Rapid diagnosis allows for […]
- Autor: S JawadCONCLUSIONS: We have estimated ICCs for key neonatal outcomes at the level of both neonatal unit and mother with high precision using national, population-level routinely […]
- Autor: Tomasz ReysnerINTRODUCTION: Total knee arthroplasty causes substantial postoperative pain. Combined adductor canal and interspace block between the popliteal artery and posterior knee capsule (iPACK) provides motor-sparing […]
- Autor: Kaoutar DanaouiHydranencephaly is a rare, fatal congenital brain malformation characterized by near-complete absence of cerebral hemispheres with preservation of posterior fossa structures. We report a male […]
- Autor: Andrea M Asaf-CalderonIntroduction Osteosarcoma is the most common primary malignant bone tumor; however, involvement of the temporal bone is exceptionally rare, particularly during pregnancy. The coexistence of […]
- Autor: Yu NamikataCONCLUSIONS: Congenital laryngotracheoesophageal cleft and tracheal stenosis, a rare and mostly fatal anomaly, can be diagnosed in neonates using intubation videoendoscopy. Rapid diagnosis allows for […]
- Autor: Sharla RentINTRODUCTION: Perinatal mortality remains high in low- and middle-income countries, with Tanzania bearing one of the greatest burdens. The Three Delays framework is often used […]
- Autor: S JawadCONCLUSIONS: We have estimated ICCs for key neonatal outcomes at the level of both neonatal unit and mother with high precision using national, population-level routinely […]
- Autor: Gelana FekaduCONCLUSION: PFE in patient safety in Ethiopian ICUs was endorsed in principle yet remained constrained by sociocultural contexts, hierarchical power dynamics, and limited institutional support […]
- Autor: Megan A BrandelandCONCLUSION: In this study, clinical ethical dilemmas among international patients arose primarily in the context of medical decision making during serious illness and at the […]
- Autor: Jennifer L FangTelemedicine, rapid genomic sequencing (rGS), artificial intelligence (AI), and emerging interventions at the limits of viability are reshaping neonatal critical care and transforming the future […]
- Autor: Kaoutar DanaouiHydranencephaly is a rare, fatal congenital brain malformation characterized by near-complete absence of cerebral hemispheres with preservation of posterior fossa structures. We report a male […]
- Autor: Andrea M Asaf-CalderonIntroduction Osteosarcoma is the most common primary malignant bone tumor; however, involvement of the temporal bone is exceptionally rare, particularly during pregnancy. The coexistence of […]
- Autor: Yu NamikataCONCLUSIONS: Congenital laryngotracheoesophageal cleft and tracheal stenosis, a rare and mostly fatal anomaly, can be diagnosed in neonates using intubation videoendoscopy. Rapid diagnosis allows for […]
- Autor: S JawadCONCLUSIONS: We have estimated ICCs for key neonatal outcomes at the level of both neonatal unit and mother with high precision using national, population-level routinely […]
- Autor: Gelana FekaduCONCLUSION: PFE in patient safety in Ethiopian ICUs was endorsed in principle yet remained constrained by sociocultural contexts, hierarchical power dynamics, and limited institutional support […]
- Autor: Megan A BrandelandCONCLUSION: In this study, clinical ethical dilemmas among international patients arose primarily in the context of medical decision making during serious illness and at the […]
- Autor: Katie KnottsBackgroundIn the UK, numbers of newborn babies entering state care through child protection processes have significantly increased in the last decade. Their mothers often have […]
- Autor: Seonhwa LeeCONCLUSIONS: The increasing incidence and changing mortality patterns of life-limiting conditions among children and young people in Korea indicate growing care needs. Enhancing paediatric palliative […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty

Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.
Odborné stanovisko Sekce dětské paliativní medicíny České pediatrické společnosti ČLS JEP k problematice paliativní sedace u dětských pacientů v závěru života.



