UP TO DATE
Nejnovější mezinárodní publikace o paliativní péči
- Autor: Gideon U JohnsonCONCLUSION: Transnational, clinically embedded doctoral pathways can enhance nursing research capacity but require deliberate institutional design: genuine protected time, cross-jurisdictional support and mentorship ecosystems. The […]
- Autor: Evans Appiah OseiBlack/African American women with breast and gynecologic cancers face stark end-of-life (EOL) inequities rooted in structural racism, gendered oppression, and financial toxicity. Despite abundant evidence […]
- Autor: Hannah ChoBackgroundAlthough previous research has highlighted the protective effect of social support in caregiving contexts, further investigation is needed to understand its complex roles in modifying […]
- Autor: Maiken JørgensenCONCLUSION: Cardiac nurses perceive palliative care for patients with heart failure as both challenging and frequently overlooked within cardiac care settings. The nurses often struggle […]
- Autor: Prapan PhetlerthirunkulCONCLUSION: Nurse-led palliative care has a potential effect to improve quality of life, total pain score, symptom burden, fatigue, functional capacity, and well-being for patients […]
- Autor: Jordan M AlpertCONCLUSIONS AND IMPLICATIONS: Patients undergoing hospital admission suffered distressing experiences, but most patients did not have do-not-resuscitate orders, and referrals to hospice and palliative care […]
- Autor: Todd D BeckerCONCLUSIONS: High variability in hospice clinician presence throughout the MAID procedure may differentially affect patient care. Future best-practices research should explore stakeholder experiences of trajectories […]
- Bidirectional Associations Between End-of-Life Communication and Depressive Symptoms in Older AdultsAutor: Miharu NakanishiCONCLUSION: Older adults appear at risk for having depressive symptoms following discussing end-of-life wishes with their physicians. End-of-life communication may reflect an ongoing trajectory of […]
- Autor: Maiken JørgensenCONCLUSION: Cardiac nurses perceive palliative care for patients with heart failure as both challenging and frequently overlooked within cardiac care settings. The nurses often struggle […]
- Autor: Prapan PhetlerthirunkulCONCLUSION: Nurse-led palliative care has a potential effect to improve quality of life, total pain score, symptom burden, fatigue, functional capacity, and well-being for patients […]
- Autor: Todd D BeckerCONCLUSIONS: High variability in hospice clinician presence throughout the MAID procedure may differentially affect patient care. Future best-practices research should explore stakeholder experiences of trajectories […]
- Bidirectional Associations Between End-of-Life Communication and Depressive Symptoms in Older AdultsAutor: Miharu NakanishiCONCLUSION: Older adults appear at risk for having depressive symptoms following discussing end-of-life wishes with their physicians. End-of-life communication may reflect an ongoing trajectory of […]
- Autor: Yun CaoNo abstract
- Autor: Holly E EvansCONCLUSION: Participants with ovarian cancer viewed prognostic testing positively. However, successful implementation will require a patient-centred approach that accommodates diverse preferences around how the test […]
- Autor: Manuel GranellThis article is the third in a series of articles prepared as part of a comprehensive, international and professional society-approved consensus project to advise on […]
- Autor: Ann DadichNo abstract
- Autor: Holly E EvansCONCLUSION: Participants with ovarian cancer viewed prognostic testing positively. However, successful implementation will require a patient-centred approach that accommodates diverse preferences around how the test […]
- Autor: Tomasz ReysnerCONCLUSION: Intravenous dexamethasone effectively prolongs analgesia and reduces opioid requirements after pediatric foot and ankle surgery. While 0.2 mg/kg provides maximal benefit, 0.1 mg/kg may […]
- Autor: Akram Al-MakkiConflicts severely disrupt care for patients with kidney failure, often limiting access to dialysis. In these challenging settings, conservative kidney management (CKM) emerges as a […]
- Autor: Daniel H GrossoehmeCONCLUSIONS: Caregivers will disclose sensitive information for health care research, providing evidence for subsequent, adequately powered studies to inform policy-making. While underpowered for between-group analyses, […]
- Autor: Y Y TanCarnitine palmitoyltransferase II (CPT II) deficiency is a rare inherited disorder of mitochondrial oxidation of long-chain fatty acids (LCFA). Carnitine is the sole carrier of […]
- Autor: Farzaneh TaghaeeCONCLUSION: As evidenced, healthcare policymakers and clinical instructors should develop and implement appropriate CB training programs for nursing students to promote the quality of patient […]
- Autor: Mahmasoni MasdarMoral distress is a prevalent and disruptive force in palliative care practice, undermining clinicians' capacity to uphold ethical integrity amid systemic and situational constraints. As […]
- Autor: Mostofa Kamal ChowdhuryCONCLUSION: Recruiting palliative care volunteers from the same community as patients may enhance palliative care programs by helping healthcare providers to understand the unique needs […]
- Autor: Holly E EvansCONCLUSION: Participants with ovarian cancer viewed prognostic testing positively. However, successful implementation will require a patient-centred approach that accommodates diverse preferences around how the test […]
- Autor: Amina ElzeinyCONCLUSIONS: While many students showed some acceptance of death, high degrees of fear, avoidance, and escape acceptance had a significant impact on their views about […]
- Autor: Daniel H GrossoehmeCONCLUSIONS: Caregivers will disclose sensitive information for health care research, providing evidence for subsequent, adequately powered studies to inform policy-making. While underpowered for between-group analyses, […]
- Autor: Y Y TanCarnitine palmitoyltransferase II (CPT II) deficiency is a rare inherited disorder of mitochondrial oxidation of long-chain fatty acids (LCFA). Carnitine is the sole carrier of […]
- Autor: Farzaneh TaghaeeCONCLUSION: As evidenced, healthcare policymakers and clinical instructors should develop and implement appropriate CB training programs for nursing students to promote the quality of patient […]
- Autor: Mahmasoni MasdarMoral distress is a prevalent and disruptive force in palliative care practice, undermining clinicians' capacity to uphold ethical integrity amid systemic and situational constraints. As […]
- Autor: Mostofa Kamal ChowdhuryCONCLUSION: Recruiting palliative care volunteers from the same community as patients may enhance palliative care programs by helping healthcare providers to understand the unique needs […]
- Autor: Bilena Margarita Molina ArtetaFacial pain associated with oncologic pathologies in pediatric patients presents significant diagnostic and therapeutic challenges with a considerable impact on quality of life. In this […]
- Autor: Danielle SchoenakerCONCLUSION: Based on observational evidence, increasing access to preconception care could be beneficial to optimize maternal nutrition and weight-related outcomes, and addressing obesity and GWG […]
- Autor: Y Y TanCarnitine palmitoyltransferase II (CPT II) deficiency is a rare inherited disorder of mitochondrial oxidation of long-chain fatty acids (LCFA). Carnitine is the sole carrier of […]
- Autor: Taryn L LuitinghCONCLUSION: Personalised provisions of love and care were dignities parents could warmly reflect back on during their bereavement. Importantly, tailoring memory making practices to the […]
- Autor: Lihua WenHigh-frequency oscillation ventilation (HFOV) is a commonly used therapeutic modality in the pediatric intensive care unit, and this study aims to investigate the clinical characteristics […]
- Autor: Elizabeth G Broden ArcipreteCONCLUSIONS: Most included studies targeted clinician outcomes through education. Designing, testing, and implementing interventions focused on family outcomes is a critical next step.
- Autor: Kerstin KnightBased on an analysis of a case study from a Victorian case of neonatal hypoxic ischaemic encephalopathy (HIE), I want to propose that in some […]
- Autor: Giulia LimaUmbilical arterial catheters (UAC) in neonates are used for blood pressure monitoring, blood sampling, administration of fluids, nutrition, and medications. As UAC applications evolve, enteral […]
- Autor: Shirley Du YanAlthough India's health outcomes have improved, progress can still be made to reduce the health burden from tuberculosis, noncommunicable diseases, and maternal and neonatal health. […]
- Autor: Y Y TanCarnitine palmitoyltransferase II (CPT II) deficiency is a rare inherited disorder of mitochondrial oxidation of long-chain fatty acids (LCFA). Carnitine is the sole carrier of […]
- Autor: Lihua WenHigh-frequency oscillation ventilation (HFOV) is a commonly used therapeutic modality in the pediatric intensive care unit, and this study aims to investigate the clinical characteristics […]
- Autor: Elizabeth G Broden ArcipreteCONCLUSIONS: Most included studies targeted clinician outcomes through education. Designing, testing, and implementing interventions focused on family outcomes is a critical next step.
- Autor: Shirley Du YanAlthough India's health outcomes have improved, progress can still be made to reduce the health burden from tuberculosis, noncommunicable diseases, and maternal and neonatal health. […]
- Autor: Vinami YulianCONCLUSIONS: The Desa SIAGA programme could bring benefits to improve MNH outcomes through the active participation of the community, but this will remail limited unless […]
- Autor: Katarzyna UrbanskaCONCLUSIONS: These findings highlight the need for structured education focused not only on clinical skills but also on emotional preparedness. Psychological support systems should be […]
- Autor: Mircea-Horia Popa-TodirenchiCONCLUSION: This study provides detailed data on the procedural quality of LISA when opioid analgesia and video laryngoscopy are used. This data may inform future […]
- Autor: Hanna LofgrenCONCLUSION: The creation of a multidisciplinary quality improvement (QI) team, the implementation of end-of-life guidelines, electronic health record (EHR) modifications, and staff education improved symptom […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.