UP TO DATE
Nejnovější mezinárodní publikace o paliativní péči
- Autor: Anna K BonkhoffOBJECTIVE: To systematically evaluate which lesion-based imaging features and methods allow for the best statistical prediction of poststroke deficits across independent datasets.
- Autor: Alison O'DafferCONCLUSIONS: This study found that resilience is a highly relevant psychological factor associated with HbA1c and a key mental health factor for EAs with T1D. […]
- Autor: David CantelmiCONCLUSIONS: Palliation at the referring hospital should be considered as an option when escalating care is predicted to not affect outcome. In this cohort the […]
- Autor: Anette EkmannCONCLUSIONS: In a period where hip fracture patients were offered two home visits after discharge, we observed lower 30- and 120- day readmission, and lower […]
- Autor: Lisa R LaRoweThe majority of older adults in the United States (U.S.) have been bothered by pain in the past month and over one-third report pain that […]
- Autor: Yiheng CaiCONCLUSION: Both PTCD and ERCP could improve liver function for MOJ patients. PTCD seems to offer better outcomes in jaundice reduction and liver function improvement […]
- Autor: Laura C HarrisonExplanatory models (EMs) are used in medical anthropology to characterize individual understandings of illness. This study investigated how interdisciplinary clinical interactions elicited caregiver EMs at […]
- Autor: Whitley W AamodtBACKGROUND AND OBJECTIVES: Although neurodegenerative diseases are a leading cause of death, little is known about health care utilization and cost during the end-of-life (EoL) […]
- Autor: Gupta MayankCONCLUSIONS: The study emphasize the need for and provide a roadmap for developing context-specific and culturally appropriate CBPC services to address the identified challenges and […]
- Autor: Stephanie StocklassaCONCLUSIONS: The course "The Patient as Teacher" presents a valuable tool for experiential learning in palliative care, which has elicited an unceasingly positive response among […]
- Autor: Anuj JainCONCLUSION: HNC patients in palliative care settings were chronically sleep deprived. Sleep architecture was also disturbed. Moderate levels of anxiety, depression, confusion, and distress existed […]
- Autor: Haris ZiaCardiac septal occluder (CSO) can be used endoscopically in treatment of tracheoesophageal fistula (TEF). We present a case of metastatic cervical cancer with direct tracheal […]
- Autor: Yanxia LinCONCLUSIONS: Kolcaba's Comfort Theory has been largely used in interventions and assessments across a wide range of contexts, providing a set of options for practitioners. […]
- Autor: Jan DrewsCONCLUSIONS: Biliary drainage in complex malignant hilar obstruction due to cholangiocarcinoma is more likely to be successful and less likely to cause adverse events in […]
- Autor: Neha BurlaCONCLUSION: This SSR in SEBA concludes that GNWR does impact PIF when effectively structured and supported. The Krishna-Pisupati Model for PIF platforms a model that […]
- Autor: Signe SeimCONCLUSION: The findings show that a lack of guidelines allowed for diverse approaches to the treatment of patients with diabetes in palliative care. Attentiveness to […]
- Autor: Alison O'DafferCONCLUSIONS: This study found that resilience is a highly relevant psychological factor associated with HbA1c and a key mental health factor for EAs with T1D. […]
- Autor: Lauren KeladaBACKGROUND: Having a brother or sister who has a chronic illness (lasting >6 months and requiring long-term care) or life-limiting condition (LLC; where cure is […]
- Autor: Laura C HarrisonExplanatory models (EMs) are used in medical anthropology to characterize individual understandings of illness. This study investigated how interdisciplinary clinical interactions elicited caregiver EMs at […]
- Autor: Andrew R ZulloCONCLUSIONS AND RELEVANCE: This cohort study suggests that most older drivers involved in MVCs did not use fewer PDI medications after crashes than before crashes. […]
- Autor: Daniel Toro-PérezCONCLUSIONS: This study confirmed that the psychometric properties of the qESNA scale are good and the scale's usefulness as an instrument to detect emotional suffering […]
- Autor: Karina Alejandra Ortega AgonPain, a prevalent and debilitating symptom in cancer patients, significantly diminishes the quality of life for both individuals and their families. Addressing this critical issue, […]
- Autor: Raghuram KogantiConscientious objection is a legally protected right of medical professionals to recuse themselves from patient care activities that conflict with their personal values. Anesthesiology is […]
- Autor: Tim LuckettCONCLUSION: Future research should focus on developing and evaluating guidelines and other resources specific to children with brain cancer, as well as informing suitable models […]
- Autor: Tomoo IkariCONCLUSION: The concordance rate between the preferred and actual places of death is not high in Japan. Improving concordance between patients' preferences and actual places […]
- Autor: Lovely AntonyImproving the quality of research reporting is crucial for addressing current challenges in palliative care, with academic journals playing a crucial role in promoting clear […]
- Autor: Marta Gil GlaríaCONCLUSIONS: SDM implementation should be guided by evidence-based methodological models justifying and structuring its execution, especially in complex and interdisciplinary contexts. National or international frameworks […]
- Autor: Lauren S CraftsCONCLUSIONS: Communicating serious news effectively is a skill that can be learned in a sustainable way and is essential in the field of pediatric cardiology. […]
- Autor: Sheila LahijaniAmong the potential complications of allogeneic hematopoietic stem cell transplantation (HSCT), graft-versus-host disease (GVHD) is common and associated with significant physical and psychosocial symptom burden. […]
- Autor: C Y JorenCONCLUSION: The purposes for which healthcare professionals wish to use an ICP in PPC are broader than the purpose for which the ICP for PPC […]
- Autor: Prakash MahalaIntroduction The geriatric population, aged 60 years and older, is rapidly growing worldwide. This demographic shift has led to a higher prevalence of chronic diseases, […]
- Autor: A M O RochaIntegrative practices have been incorporated into palliative care to provide holistic and multidimensional care for patients. This study aims to identify the scope of integrative […]
- Autor: David CantelmiCONCLUSIONS: Palliation at the referring hospital should be considered as an option when escalating care is predicted to not affect outcome. In this cohort the […]
- Autor: Sophie BertaudBACKGROUND: Perinatal palliative care can offer compassionate support to families following diagnosis of a life-limiting illness, to enable them to make valued choices and the […]
- Autor: Dana PeraltaCONCLUSIONS: Spirituality was discussed in approximately one-third of family conferences. Clinician engagement with spirituality discussion was variable. These findings highlight a need for training on […]
- Autor: Eun Sook KimCONCLUSION: The protocol was feasible and improved nurses' competency and attitude in providing end-of-life care for infants and parents requiring support due to the loss […]
- Autor: Palanikumar BalasundaramGastroschisis is a congenital anomaly characterized by herniation of abdominal contents via a defect in the anterior abdominal wall. Gastroschisis can manifest as simple or […]
- Autor: Marti D SofferCONCLUSION: When diagnosing a severe and potentially fatal congenital cardiac anomaly, counseling by MFMs was largely unaffected by personal beliefs regarding termination of pregnancy. While […]
- Autor: Stacey DornetteDelirium often goes unrecognized in neonates and children because of lack of experience in evaluating behavior and cognition, insufficient awareness of the prevalence, and nondistinctive […]
- Autor: Meghan E LindsayCONCLUSION: A high proportion of decedents attained specified EOLC-QMs more than 30 days before death. Our findings indicate that NLP is a feasible approach to […]
- Autor: Sophie BertaudBACKGROUND: Perinatal palliative care can offer compassionate support to families following diagnosis of a life-limiting illness, to enable them to make valued choices and the […]
- Autor: Palanikumar BalasundaramGastroschisis is a congenital anomaly characterized by herniation of abdominal contents via a defect in the anterior abdominal wall. Gastroschisis can manifest as simple or […]
- Autor: Marti D SofferCONCLUSION: When diagnosing a severe and potentially fatal congenital cardiac anomaly, counseling by MFMs was largely unaffected by personal beliefs regarding termination of pregnancy. While […]
- Autor: Meghan E LindsayCONCLUSION: A high proportion of decedents attained specified EOLC-QMs more than 30 days before death. Our findings indicate that NLP is a feasible approach to […]
- Autor: Elliott Mark WeissCONCLUSIONS: This manuscript shares our rationale and processes for the creation of a research team member-facing intervention aiming to improve recruitment processes for neonatal clinical […]
- Autor: Katharina M D MerolliniCONCLUSIONS: We identified a range of factors associated with hospitalisation and higher hospital costs for cancer survivors, and our results clearly demonstrate very high public […]
- Autor: Fatemeh OskouieCONCLUSION: The findings revealed concepts surrounding parents' participation in decision-making for life-threatening conditions neonates are influenced by social, legal, cultural, and financial aspects. To bridge […]
- Autor: Giorgio CozziCONCLUSIONS: The use of the intranasal and sublingual routes for analgesia in the paediatric ED is still limited.
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Zajímavé monografie a odborné texty na téma dětská paliativní péče
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Zprávy z projektů nebo články v indexovaných časopisech s recenzním řízením
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.