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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Julie YoungPalliative care is undergoing a significant transformation, driven by a global ageing population, a corresponding rise in chronic conditions and a growing need for integration […]
- Autor: Xingru LiCONCLUSIONS: Although nurses and physicians share consistent palliative rehabilitation goals, the integration of RICU-based rehabilitation into palliative care is constrained by systemic resource limitations, patient […]
- Autor: Edoardo VarrattaOBJECTIVE: Hospices represent the cornerstone of modern palliative services. However, population-level data on hospice utilization and characteristics of patients dying in hospice remain limited to […]
- Autor: Hiroyuki YamamotoCONCLUSIONS: In Japanese patients undergoing cancer chemotherapy for the first time, both functional and life prognoses are important. Patients who wanted to know about one […]
- Autor: Hannes JacobsINTRODUCTION: Nursing home residents with cancer face particularly high needs for end-of-life care compared to those without cancer. This study aims to examine differences in […]
- Autor: Nikki Y YeoCONCLUSIONS: One-third of patients admitted to the ICU did not have goals of care documented on the study day. Most patients were discharged alive from […]
- Autor: Jun KakoCONCLUSIONS: Psychotherapeutic techniques for dyspnea demonstrate substantial delivery heterogeneity and are predominantly integrated into multicomponent programs. Future research should distinguish the core from adaptable components, […]
- Autor: Katharina BlattnerINTRODUCTION: People in rural Aotearoa New Zealand (NZ) face distinct health challenges, including limited access to health care, workforce shortages, and persistent disparities. Hauora Taiwhenua […]
- Autor: L H NielsenCONCLUSION: This study indicates socioeconomic disparities in SACT utilization, with lower use among disadvantaged patients primarily within palliative treatment regimens. Some of the observed differences […]
- Autor: Kazuaki NayaCONCLUSION: The final nurse-led intervention program was designed to facilitate more consistent delivery of end-of-life care in the ICU regardless of individual providers' knowledge or […]
- Autor: Rosa R BaierPartner engagement is critical for embedded pragmatic research, yet few structured methods guide early collaboration to strengthen feasibility and mutual understanding. In this case study, […]
- Autor: Maddy FrenchCONCLUSIONS: Disparities in the use of children and young people's palliative care services were demonstrated. Future research should focus on developing measures of complex need […]
- Autor: Claudia GamondiPopulation ageing is accelerating globally, creating complex clinical, ethical and organisational challenges for health systems. Older adults frequently experience multimorbidity, frailty and cognitive impairment, leading […]
- Autor: Susannah BrowneCONCLUSION: Research on the role of GPs in care home PEOLC remains underdeveloped. Findings identified promising improvement strategies and highlighted the challenges for service improvement […]
- Autor: Katharina KlatteNo abstract
- Autor: Carina Werkander HarstädeNo abstract
- Autor: Aleksandra E OlszewskiCONCLUSIONS: PICU conflict sources are variable, and leaders' approaches differed based on experience, decision type, and conflict type. We present a descriptive account of approaches […]
- Autor: Margarita AndreevaCONCLUSIONS: This synthesis highlights substantial context-specific disparities in meningitis care. In LMICs, the primary points of failure relate to access and resources, with financial barriers, […]
- Autor: Amanda C MoaleBACKGROUND: Chronic critical illness (CCI) is marked by persistent respiratory failure, with patients commonly receiving tracheostomies for ongoing ventilation across ICU and post-ICU settings. Well-documented […]
- Autor: Meaghann S WeaverPediatric palliative care (PPC) data are largely absent from national cancer registries, creating critical gaps in understanding when and how children with cancer receive PPC […]
- Autor: Taylor Anne MerrittINTRODUCTION: Recognizing and managing high-acuity, low-frequency pediatric conditions such as near-fatal bronchospasm with respiratory failure and uncompensated septic shock are essential skills for trainees. These […]
- Autor: Saba KhurshidCONCLUSION: These findings underscore the urgent need to address multifaceted medical, psychosocial, and socioeconomic challenges to pediatric palliative care in developing countries. Prioritizing a multidisciplinary […]
- Autor: Steven Z PantilatAn ongoing commitment to quality improvement (QI) is essential in palliative care (PC), where patients are often frail, suffering is pervasive, and time may be […]
- Autor: Kamya BijawatCONCLUSION: Resident emotional burnout and coping showed a possible trend towards improvement, though this was not statistically significant and longer-term studies are needed. These debriefs […]
- Autor: Amanda C MoaleBACKGROUND: Chronic critical illness (CCI) is marked by persistent respiratory failure, with patients commonly receiving tracheostomies for ongoing ventilation across ICU and post-ICU settings. Well-documented […]
- Autor: Stephanie A KraftNo abstract
- Autor: Taylor Anne MerrittINTRODUCTION: Recognizing and managing high-acuity, low-frequency pediatric conditions such as near-fatal bronchospasm with respiratory failure and uncompensated septic shock are essential skills for trainees. These […]
- Autor: Saba KhurshidCONCLUSION: These findings underscore the urgent need to address multifaceted medical, psychosocial, and socioeconomic challenges to pediatric palliative care in developing countries. Prioritizing a multidisciplinary […]
- Autor: N I Yuhong[This corrects the article DOI: 10.3389/fped.2026.1688720.].
- Autor: Darren HaywoodCONCLUSION: Completed trials were limited and highly variable in approach, components, and outcome measures, suggesting regionally specific guidelines enhance relevance, applicability, and transition practices. Future […]
- Autor: Debasis DasCONCLUSIONS: Corrective surgery after RVOT stenting in TOF is safe and feasible, with favorable early outcomes. Early repair – preferably within 5 months of RVOT […]
- Autor: James A BourgeoisCONCLUSION: Fragile X-associated Tremor/Ataxia Syndrome (FXTAS) is a neurodegenerative disorder affecting FMR1 premutation carriers (55-200 CCG repeats) that is an illustrative model for a genetically-determined […]
- Autor: Maddy FrenchCONCLUSIONS: Disparities in the use of children and young people's palliative care services were demonstrated. Future research should focus on developing measures of complex need […]
- Autor: Isabella HaddenWe sought to characterize bedside nurses' perceptions of providing intensive care to patients with trisomy 18 (T18) in a level IV neonatal intensive care unit […]
- Autor: Debasis DasCONCLUSIONS: Corrective surgery after RVOT stenting in TOF is safe and feasible, with favorable early outcomes. Early repair – preferably within 5 months of RVOT […]
- Autor: Francesca CatapanoCONCLUSIONS: PG showed a significant growth over 13 years suggesting the strong need of a service of PPC. The continuity of care provided by PG […]
- Autor: Marijanne EngelOBJECTIVES: In the Netherlands, around 750 children (0-21 year) die annually from potentially palliative conditions. The majority of these children reside at home, receiving care […]
- Autor: Nertila PodgoricaCONCLUSION: This cross-national synthesis demonstrates the breadth and depth of doctoral nursing research in the Sigma Europe Region. Findings highlight nursing's pivotal role in addressing […]
- Autor: Kimber L CockerellArt has long supported healing, and, in nursing, creative practices such as music, writing, and photography enhance holistic care by fostering connection, emotional well-being, and […]
- Autor: Wouter J DronkersThe presented case involves an infant with a prenatally diagnosed giant encephalocele including parts of the occipital and superior parietal lobes, as well as the […]
- Autor: Maddy FrenchCONCLUSIONS: Disparities in the use of children and young people's palliative care services were demonstrated. Future research should focus on developing measures of complex need […]
- Autor: Stephanie A KraftNo abstract
- Autor: Debasis DasCONCLUSIONS: Corrective surgery after RVOT stenting in TOF is safe and feasible, with favorable early outcomes. Early repair – preferably within 5 months of RVOT […]
- Autor: Tao WeiNo abstract
- Autor: Francesca CatapanoCONCLUSIONS: PG showed a significant growth over 13 years suggesting the strong need of a service of PPC. The continuity of care provided by PG […]
- Autor: Wouter J DronkersThe presented case involves an infant with a prenatally diagnosed giant encephalocele including parts of the occipital and superior parietal lobes, as well as the […]
- Autor: R WhybrowBACKGROUND: Concern exists about the variation in maternity services across England, highlighted by various high-profile investigations into care failures. In response, NHS England developed the […]
- Autor: Çigdem Müge HayliCONCLUSION: These results showed that the pediatric palliative care scale has a unique structure and its validity-reliability is high. It has been determined that the […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.