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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Maria LaboriCONCLUSIONS: Patients managed at a dedicated palliative care outpatient clinic showed improvements in symptom control and quality of life over time, which may reflect the […]
- Autor: Anna KonyshevaCONCLUSION: While overall improvement rates were comparable, chlorpromazine was associated with higher improvement rates than metoclopramide in the neurogenic subgroup. Given the observational, non-randomized design […]
- Autor: Maria Isabel CardonaDementia and other neurodegenerative disorders place growing pressure on European health systems, yet evidence on how care pathways are structured, implemented, and evaluated remains fragmented. […]
- Autor: Richard C Oude VoshaarBACKGROUND: Death wishes and end-of-life legislation are increasingly relevant in ageing societies, where demographic shifts and evolving legal frameworks appear to raise complex ethical and […]
- Autor: Meena KalluriCONCLUSIONS: Our study suggests perceptions of the invisibility and inevitability of breathlessness in F-ILD can change. Management of breathless patients can improve through awareness, education […]
- Autor: Sarah WilsonCONCLUSION: Research is needed in order to ascertain how care can be improved for this group of patients. More UK-centric work is required to understand […]
- Autor: Cheri SalazarChildren with complex medical care needs require extensive resources. Their families face significant challenges in coordinating care, managing insurance, and integrating various care plans, especially […]
- Autor: Chiara MarzoratiINTRODUCTION: Spinal cord stimulation (SCS) has been used to manage a variety of chronic pain conditions, including cancer population. People suffering from this medical condition […]
- Autor: Chiu-Mieh HuangCONCLUSIONS: Trust in the technology and satisfaction with the learning experience play critical roles in shaping continued engagement and willingness to recommend such interventions. Integrating […]
- Autor: Christopher M WilsonMovement and bodily autonomy are integral to life and participation in meaningful activities. Current advance care planning (ACP) and advance directive processes do not consistently […]
- Autor: Ivana T CroghanConventional cigarette smoking remains a leading preventable cause of morbidity and mortality despite declining prevalence, yet evidence-based treatments remain underused. This narrative review examines guideline-supported […]
- Autor: Nicolas Tekin JonesINTRODUCTION: Half of all patients with a hip fracture (HF) do not recover their pre-fracture mobility after 1 year. Mobility and functional capabilities may be […]
- Autor: Elham S AlzahraniCONCLUSION: The underutilization of interventional pain management techniques is driven by a complex interplay of patient misconceptions, clinician training gaps, and systemic fragmentation.
- Autor: Tuti Anggriani UtamaTelepalliative care has emerged as an innovative approach to expanding access to palliative services through digital health technologies. Despite increasing adoption, evidence regarding its impact […]
- Autor: Andres Meraz-BrenezImmune checkpoint inhibitors (ICIs) have transformed the treatment landscape for multiple cancers but remain largely inaccessible in low- and middle-income countries (LMICs) due to high […]
- Autor: Ahlam El MasmoudiSarcina ventriculi is a rare, acid-resistant, carbohydrate-fermenting, Gram-positive bacterium most often reported in the setting of delayed gastric emptying or gastric stasis and obstruction. Its […]
- Autor: Anna Katharina VokingerCONCLUSIONS: In their bereavement, participating fathers reported shifts in their sense of self and priorities while navigating emotions of failure and newfound kindness. These experiences […]
- Autor: Melissa RiegelCONCLUSIONS: ICU family-focused end-of-life and bereavement interventions can provide meaningful support, but effectiveness is difficult to determine due to inconsistent implementation and methodological variation. Findings […]
- Autor: Cheri SalazarChildren with complex medical care needs require extensive resources. Their families face significant challenges in coordinating care, managing insurance, and integrating various care plans, especially […]
- Autor: Ashwin KannanWithin modern medical practice, growing demands for productivity and efficiency increasingly endanger opportunities for meaningful patient connection, leaving patients and caregivers feeling unheard. Narrative medicine […]
- Autor: Yonghyuk JeonCONCLUSIONS: EOL decision timing and care patterns differed between oncology and non-oncology patients, suggesting disease trajectory may influence EOL decision-making in PICUs.
- Autor: Bethan PageCONCLUSIONS: Healthcare providers must allocate resources to address the increasing complexity of need in children with life-limiting conditions. No data were available on family impacts […]
- Autor: Dimitrios StylianakisPalliative care integrated with standard oncology treatment improves symptoms, quality of life and communication, and may extend survival in select populations. However, its integration into […]
- Autor: Stefanie ZschäbitzCONCLUSIONS: EVP demonstrated robust effectiveness and manageable toxicity in a large and diverse real-world cohort including patients with divergent histology. Skin toxicity was associated with […]
- Autor: Danni LvCONCLUSIONS: PPC should be integrated early into serious pediatric illness care while remaining adaptable to local health-system capacity, culture, and family needs. Future progress requires […]
- Autor: Ceilidh Eaton RussellGrieving children may wonder about questions of illness, dying, and death as they navigate the death of, or grief for, someone who matters to them. […]
- Autor: Callie Daniels-HowellThe International Children's Palliative Care Network (ICPCN) held its 4th international conference in Manila, Philippines (12th-15th November 2025), in partnership with The Ruth Foundation. The […]
- Autor: Zongwen YiCONCLUSION: This study reveals that the Palliative care nurse retention intention in their positions is a complex phenomenon influenced by multiple factors. It emphasizes that […]
- Autor: Maddison C SmithAIM: Family members of patients with developmental and epileptic encephalopathies (DEEs) face profound emotional, social and practical challenges, yet little is known about how they […]
- Autor: Aline Maria de Oliveira RochaCONCLUSIONS: This first NMA in pediatric palliative care suggests that hypnosis-based interventions may be promising for symptom management, but the evidence is limited by high […]
- Autor: Ian BatandaCONCLUSION: Attendance at the FPRRH palliative care unit indicates expanding access, with service pathways suggesting integration into hospital services. Notable gaps include limited pediatric access, […]
- Autor: Noyuri YamajiCONCLUSIONS: Pediatric cancer diagnosis communication in Japan is shaped by five approaches that prioritize the child's best interests. Locally grounded strategies highlight the importance of […]
- Autor: Melissa RiegelCONCLUSIONS: ICU family-focused end-of-life and bereavement interventions can provide meaningful support, but effectiveness is difficult to determine due to inconsistent implementation and methodological variation. Findings […]
- Autor: Yonghyuk JeonCONCLUSIONS: EOL decision timing and care patterns differed between oncology and non-oncology patients, suggesting disease trajectory may influence EOL decision-making in PICUs.
- Autor: Ya Haddy SallahThe purpose of this study was to evaluate current practices in the management of epithelial ovarian cancer (OC) in sub-Saharan Africa (SSA). A 27-question survey […]
- Autor: Jeanette FinderupCONCLUSION: The limited evidence on nurse-led shared decision making spans diverse clinical contexts and uses various interventions. Future research of nurse-led shared decision making interventions […]
- Autor: Javier Jiménez FloresBackgroundNeonatal nursing care requires ethical competence alongside technical expertise. Despite progress in Spain, disparities persist in ethical training and professional autonomy in neonatal units.ObjectiveTo examine […]
- Autor: Caroline M WellsCONCLUSIONS: Novel findings include parents holding unwavering hope and placing higher importance on both decision-making and forming deep infant connection over providing infant care. These […]
- Autor: Giulia ManziINTRODUCTION: The numbers of children and young people living with chronic conditions are rising, with many experiencing significant functional limitations and complex healthcare needs. As […]
- Autor: Kelly CoxCONCLUSIONS: Half of fetuses with truncus arteriosus will have an associated genetic abnormality or extracardiac anomaly. Truncal valve stenosis and ventricular dysfunction, as well as […]
- Autor: Ya Haddy SallahThe purpose of this study was to evaluate current practices in the management of epithelial ovarian cancer (OC) in sub-Saharan Africa (SSA). A 27-question survey […]
- Autor: Jeanette FinderupCONCLUSION: The limited evidence on nurse-led shared decision making spans diverse clinical contexts and uses various interventions. Future research of nurse-led shared decision making interventions […]
- Autor: Giulia ManziINTRODUCTION: The numbers of children and young people living with chronic conditions are rising, with many experiencing significant functional limitations and complex healthcare needs. As […]
- Autor: Kelly CoxCONCLUSIONS: Half of fetuses with truncus arteriosus will have an associated genetic abnormality or extracardiac anomaly. Truncal valve stenosis and ventricular dysfunction, as well as […]
- Autor: Stasa KrasicBACKGROUND: Percutaneous pulmonary artery banding and patent ductus arteriosus closure in infants are minimally invasive, catheter-based alternatives to open-heart surgery for managing congenital heart disease […]
- Autor: Sophie GlendayCONCLUSION: Whilst the CCF is generally considered to be acceptable and appropriate it is reportedly less feasible. There remains variation in the implementation of Multi-Professional […]
- Ultrasound-guided midline catheters in the neonatal intensive care unit: a single-center pilot studyAutor: Lorenzo ZanettoCONCLUSION: In this pilot study, ultrasound-guided midline catheters were feasible in neonates, including very low-birth-weight infants and those with small-caliber veins, with predominantly minor complications. […]
- Autor: Sara González-AstrayBackground: Perinatal death in Neonatal Intensive Care Units (NICUs) represents one of the most emotionally challenging experiences for nurses. While parental bereavement has been widely […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.