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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Sarah FriebertCONCLUSIONS: There were no significant differences in quality of life between groups until 1 year, except for fatigue. FACE-TC had late effects, increasing adolescents' anxiety, […]
- Autor: Raymond JonesModifiable, behavioral risk factors like occupational sitting may contribute to inflammation, an important cardiovascular risk factor. This study evaluated the association of self-reported occupational sitting […]
- Autor: Alexa FleetCONCLUSION: POs' current BH practices and challenges can guide other POs to better integrate BH. Integrating BH into the PACE model requires policy-level action, though […]
- Autor: Alexi VahlkampCONCLUSIONS: The findings suggest that it is feasible to engage older patients with advanced CKD in GOC conversations via telehealth, as patients wishing to complete […]
- Autor: Ahmed Altayeb Abbas FadlallahAlthough observational studies have linked vitamin D deficiency to diabetes, it is unknown if taking vitamin D supplements can reduce the chance of developing type […]
- Autor: Soukaina ScadiAlthough relatively rare, cardiac metastases represent a significant clinical challenge because of their impact on cardiac function and overall patient prognosis. This case presents a […]
- Perceptions of Palliative Care Among Patients With Kidney Allograft Dysfunction: A Qualitative StudyAutor: Cameron E ComrieCONCLUSIONS: Patients with declining kidney allografts have heterogeneous, unmet palliative care needs, including emotional symptoms and a desire for better prognostic awareness. Our results suggest […]
- Autor: Andrea L C SchneiderCONCLUSIONS: The CIRCE Project represents a novel cooperative research model to capture clinically validated EHR data from a large diverse academic health system in the […]
- Autor: Freja L KruseBACKGROUND AND PURPOSE: Chemotherapy-induced peripheral neuropathy (CIPN) is a common dose limiting adverse effect that may be transient or become persistent after the treatment ended. […]
- Autor: Nandan M ShanbhagGranulomatous mastitis (GM) is a chronic inflammatory breast condition that presents significant diagnostic challenges due to its clinical and imaging similarities to malignancies. Accurate diagnosis […]
- Autor: Maria Gabriela MattaCardiac tumours can be classified as neoplastic or non-neoplastic, with secondary tumours being significantly more common than primary ones. Among secondary tumours, melanoma has the […]
- Autor: Hen-Wei HuangNaloxone can effectively rescue victims from opioid overdose, but less than 5% survive due to delayed or absent first responder intervention. Current overdose reversal systems […]
- Autor: M M T AungCONCLUSIONS: These study findings offer valuable insights into prognostic factors for predicting patient outcomes and optimizing individual prognosis in pancreatic cancer cases within Malaysia context. […]
- Autor: S SharmaCONCLUSION: The study underscores the importance of understanding and addressing musculoskeletal disorders in the CKD population, emphasizing the need for tailored interventions and future research […]
- Autor: Sydney McCageCONCLUSIONS: We will use these results to administer changes and develop procedures for a pilot feasibility trial of RT-ADRD relative to a minimally enhanced control […]
- Autor: Luanna Silva Monteiro MenezesCONCLUSIONS: This study has shown that COVID-19 inpatients with cirrhosis had significantly higher incidence of severe outcomes, as well as higher frequency of institution of […]
- Autor: Brad CannellINTRODUCTION: The annual prevalence of elder mistreatment (EM) in cognitively intact older adults is estimated to be 11%, yet the annual prevalence in older adults […]
- Autor: Sarah FriebertCONCLUSIONS: There were no significant differences in quality of life between groups until 1 year, except for fatigue. FACE-TC had late effects, increasing adolescents' anxiety, […]
- Autor: Manuel Gijón MediavillaCONCLUSIONS: The study underscores the urgent need to enhance PC and EOL care teaching in Spanish medical schools, addressing gaps in physiological understanding, communication, ethics, […]
- Autor: Bawantha GamageINTRODUCTION: Colorectal cancer (CRC) is the third most common and second most deadly cancer worldwide, with significant morbidity and mortality risks. Despite advancements in surgical […]
- Autor: Oreofe O OdejideCONCLUSIONS AND RELEVANCE: Although many AYA patients with cancer died in their preferred location, over one-quarter of those who desired to die at home did […]
- Autor: Sharon BarakFor individuals with Duchenne or Becker muscular dystrophy (DMD and BMD, respectively), transitioning to adulthood presents significant challenges. Although considerable attention has been given to […]
- Autor: Olivier FortinCONCLUSIONS: Reports on the natural history of rare conditions are important to improve our understanding of these conditions. ALG11-CDG is associated with atrophy and eventual […]
- Autor: Laia Riera-NegreOBJECTIVES: This study aims to validate the Palliative and Complex Chronic Pediatric Patients QoL Inventory (PACOPED QL), a new quality-of-life (QoL) assessment tool for pediatric […]
- Autor: Bawantha GamageINTRODUCTION: Colorectal cancer (CRC) is the third most common and second most deadly cancer worldwide, with significant morbidity and mortality risks. Despite advancements in surgical […]
- Autor: Oreofe O OdejideCONCLUSIONS AND RELEVANCE: Although many AYA patients with cancer died in their preferred location, over one-quarter of those who desired to die at home did […]
- Autor: Sharon BarakFor individuals with Duchenne or Becker muscular dystrophy (DMD and BMD, respectively), transitioning to adulthood presents significant challenges. Although considerable attention has been given to […]
- Autor: Xingyue WuCONCLUSIONS: Existing evidence supports the therapeutic benefits of music therapy, massage, and hypnosis on relieving pain and anxiety symptoms in the PPC setting, though the […]
- Autor: Alessandro LunaPatients benefit from and appreciate the option to use telehealth with their providers. Such patient expectations have therefore led to new questions about the factors […]
- Autor: Gönül DüzgünCONCLUSIONS: In our study, it was clearly observed that older students enrolled in the Ege U3A, who had a high potential for volunteering, were willing […]
- Autor: Clarissa HumbergCONCLUSIONS: The impact of media use on headaches seems to be less harmful than previous research might suggest. We believe that increased time spent consuming […]
- Autor: Thomas BüttnerCONCLUSIONS: Our findings suggest that NHA therapy may confer reduced survival benefits in mCRPC patients with ECOG PS ≥2. While hope for NHA treatment persists, […]
- Autor: D ViscontiTrisomy 18 is a severe aneuploidy associated with multiple malformations and a poor prognosis. The diagnosis is typically made prenatally, leading to a high rate […]
- Autor: Olivier FortinCONCLUSIONS: Reports on the natural history of rare conditions are important to improve our understanding of these conditions. ALG11-CDG is associated with atrophy and eventual […]
- Autor: Natalie BurrillWe report a 28-year-old G2P0 at 24 weeks 5 days who presented for evaluation secondary to suspected skeletal dysplasia in her fetus. Fetal ultrasound imaging […]
- Autor: Marlieke de FouwCONCLUSION: Daily clinical practice differed from the ambitions formulated in the national treatment targets on cervical cancer control. While most women presented in advanced stage […]
- Autor: Valentina Da PratPURPOSE OF REVIEW: Several types of injectable lipid emulsions (ILEs) have become available for parenteral nutrition. The purpose of this review is to highlight the […]
- Autor: Teresa M Cardesa-SalzmannCONCLUSIONS: This case illustrates an example of pediatric precision oncology in a neonate with an ETV6::NTRK3 (+) congenital IFS of the head and neck region […]
- Autor: F TurchianoCONCLUSIONS: In perinatal critical clinical scenarios, it is imperative that healthcare providers communicate to parents using effective communication strategies, with standardized frameworks. Moreover, integrating perinatal […]
- Autor: Jozefiene JansensCONCLUSIONS: Compassionate, patient-centered care with effective verbal and non-verbal communication is vital in supporting bereaved parents during perinatal loss, and it continues to be a […]
- Autor: Marlieke de FouwCONCLUSION: Daily clinical practice differed from the ambitions formulated in the national treatment targets on cervical cancer control. While most women presented in advanced stage […]
- Autor: Jozefiene JansensCONCLUSIONS: Compassionate, patient-centered care with effective verbal and non-verbal communication is vital in supporting bereaved parents during perinatal loss, and it continues to be a […]
- Autor: José Tubal Pérez-PérezCONCLUSION: Professional experience with children with palliative needs and training seems to be related to increased knowledge of palliative care.
- Autor: Kimberley WhiteheadIn older children and adults, cognition builds upon waking sensory experience which is consolidated during sleep. In the fetus and newborn, sensory input is instead […]
- Autor: Rosa VerhoevenINTRODUCTION: Necrotising enterocolitis is a devastating gastrointestinal disease predominantly affecting preterm infants. In 40% of cases, its rapid progression renders conservative treatment insufficient, necessitating laparotomy […]
- Autor: Sharla RentCONCLUSIONS: Global perinatal palliative care strategies must encompass compassionate communication with families, psychosocial support after stillbirth or neonatal death, and emotional and mental health support […]
- Autor: Shih-Chun LinCONCLUSIONS: The likelihood of being referred to SPC was low with no significant statistical differences observed between children and young adults with maltreatment and without. […]
- Autor: Sowmiya GunabalasingamCONCLUSION: This review identified few RCTs targeting women of reproductive age with Type 2 diabetes particularly lacking in the preconception and postpartum periods. Tailored pre-pregnancy, […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Zajímavé monografie a odborné texty na téma dětská paliativní péče
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Zprávy z projektů nebo články v indexovaných časopisech s recenzním řízením
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.