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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Mariana Moreira PiresBackground: Cancer-associated cachexia (CAC) is a multifactorial syndrome driven by a profound metabolic and inflammatory dysregulation. Due to the central role of the insulin-like growth […]
- Autor: Kumiko YotsuyaCONCLUSIONS: Patients with advanced sarcoma experience an exceptionally high rate of acute-onset events and emergency admissions in their final months. Emergency hospitalization provides an opportunity […]
- Autor: Ioana Creangă-MurariuBackground: Chemotherapy-induced peripheral neuropathy (CIPN) is a common, disabling toxicity with no validated biomarkers. MRI-based functional neuroimaging could offer insight into central pain processing and […]
- Autor: Yong Yi TanBACKGROUND: End-of-life (EOL) conversations offer individuals opportunities for consideration of future treatment options with accordance to their values and wishes, helping maintain autonomy and dignity […]
- Autor: Jae Eun YuCONCLUSION: End-of-life care performance among home care workers was influenced by psychological factors, including preparedness, importance, and confidence in end-of-life care, as well as institutional […]
- Autor: Emily A PopeOsteosarcoma is the most common primary bone tumour in dogs, with approximately 75% of cases occurring in the appendicular skeleton. Standard-of-care therapy consists of limb […]
- Autor: Shinya KajiuraThis single-center retrospective cohort study assessed whether pharmacist-led recommendation and management was associated with effectiveness and safety outcomes of mirogabalin for cancer-related neuropathic pain. Among […]
- Autor: Ami BabaRandomised controlled trial (RCT) protocols contain essential details needed to understand and evaluate the trial's planned aims, design, data collection methods, monitoring, data analysis, and […]
- Autor: Claudia FischerNo abstract
- Autor: Shea PalmerCONCLUSION: The findings demonstrate a highly variable prehabilitation offer in Wales. Targeted efforts are required to improve uptake among socioeconomically disadvantaged groups to enhance cancer […]
- Autor: Lisbeth BirkelundCONCLUSIONS: By providing in-depth insights from both patient and professional perspectives, this study will help ensure the model is practical, acceptable and responsive to real-world […]
- Autor: Shun-Wei ChuangCONCLUSIONS AND RELEVANCE: In this qualitative study of parents of CMC, LST decisions were understood and approached through relational and experiential frameworks grounded in dignity, […]
- Autor: Colin J HartmanCancer is a leading cause of death in dogs, and incidence rates in dogs exceed those in humans. Current therapeutic options for canine cancer patients […]
- Autor: Xin Yao LinCONCLUSIONS: While many interventions demonstrate positive effects on caregiver outcomes, there are significant gaps in research design, evaluation, and reporting. Future studies should prioritize greater […]
- Autor: Lee H SterlingCONCLUSIONS: Early and intermediate term palliative care involvement was associated with reduced risk of death in hospital and ICU. Such consultation may improve end-of-life outcomes […]
- Autor: Clara PerenyiNo abstract
- Autor: Ami BabaRandomised controlled trial (RCT) protocols contain essential details needed to understand and evaluate the trial's planned aims, design, data collection methods, monitoring, data analysis, and […]
- Autor: Ami BabaAppropriately designed, conducted, and reported randomised controlled trials (RCTs) in children and adolescents inform treatment and health-care decisions made by young people, families, researchers, clinicians, […]
- Autor: Liana BaileyInfants, children, and youth with serious illness, and their families continue to face inequities in access to pediatric palliative care across Canada. This paper explores […]
- Autor: Shun-Wei ChuangCONCLUSIONS AND RELEVANCE: In this qualitative study of parents of CMC, LST decisions were understood and approached through relational and experiential frameworks grounded in dignity, […]
- Autor: Kyle P EdmondsCONCLUSION: Structured PCSW flowsheet documentation captured reproducible patterns of intervention and co-occurring outcome at scale. Several patterns were directionally consistent across teams and within first […]
- Autor: Marta MartisellaCONCLUSION: Although rare, MAiD-related interactions in pediatric settings are complex and high-stakes, underscoring the need for enhanced training of pediatric healthcare professionals. The proposed typology […]
- Autor: Lori A HerbstCONCLUSION: AI technology represents a potential tool for practicing skills necessary for SICs.
- Autor: Carlos Antonio Godoy JuniorBackgroundAsynchronous telemedicine may support home-based pediatric palliative care (PPC) by improving access to professional guidance and reducing caregiver uncertainty. Artificial intelligence (AI) may further enhance […]
- Autor: Shun-Wei ChuangCONCLUSIONS AND RELEVANCE: In this qualitative study of parents of CMC, LST decisions were understood and approached through relational and experiential frameworks grounded in dignity, […]
- Autor: Clara PerenyiNo abstract
- Autor: Elin HjorthCONCLUSIONS: Maintaining an open approach to existential conversations is essential to how these dialogues are carried out. Such an approach includes creating workplaces with an […]
- Autor: Belén DoucetCONCLUSIONS: The PnPC literature appears more developed in relational and family-centered approaches and in defining the interdisciplinary core team. However, the formalization of organizational processes, […]
- Autor: Marta MartisellaCONCLUSION: Although rare, MAiD-related interactions in pediatric settings are complex and high-stakes, underscoring the need for enhanced training of pediatric healthcare professionals. The proposed typology […]
- Autor: Michel Kalongo IlumbulumbuCONCLUSION: This case highlights the diagnostic complexity of pediatric retroperitoneal MTT, which can be clinically and radiologically indistinguishable from nephroblastoma. In resource-limited settings, where advanced […]
- Autor: Ali TariqA 13-year-old boy presented with acute right knee pain, significant effusion, and a complete loss of active extension following a football injury. Radiographs demonstrated patella […]
- Autor: Elin IrestormCONCLUSION: We identified several processes critical to supporting the success of an AYA cancer intervention delivery. This study highlights the potential for psychological programs to […]
- Autor: Ami BabaRandomised controlled trial (RCT) protocols contain essential details needed to understand and evaluate the trial's planned aims, design, data collection methods, monitoring, data analysis, and […]
- Autor: Ami BabaAppropriately designed, conducted, and reported randomised controlled trials (RCTs) in children and adolescents inform treatment and health-care decisions made by young people, families, researchers, clinicians, […]
- Autor: Belén DoucetCONCLUSIONS: The PnPC literature appears more developed in relational and family-centered approaches and in defining the interdisciplinary core team. However, the formalization of organizational processes, […]
- Autor: Hadis AshrafizadehAccess to palliative care for patients with chronic illnesses, including cancer, is essential. However, limited health system resources and reliance on charitable support in many […]
- Autor: Laura M BogartIntroductionCervical cancer prevalence and incidence are high in sub-Saharan Africa, especially in Uganda, where screening rates are low, despite government policy recommending screening for all […]
- Autor: Deborah F KatururaCONCLUSION: A contextually relevant training curriculum successfully enhanced neonatal trainees' self-reported confidence in performing communication tasks in family values elicitation and integration during antenatal neonatal […]
- Autor: Nwokpor Nnaemeka CollinsCONCLUSIONS: Pediatric pain management and palliative care in Nigeria are in early stages. Gaps in provider training, guideline implementation, and service availability hinder progress. Strengthening […]
- Autor: Pru HolderCONCLUSIONS: Support for families following a positive screening result for SCID needs to be considered. This includes tailored psychosocial support, given their experiences will not […]
- Autor: Belén DoucetCONCLUSIONS: The PnPC literature appears more developed in relational and family-centered approaches and in defining the interdisciplinary core team. However, the formalization of organizational processes, […]
- Autor: Laura M BogartIntroductionCervical cancer prevalence and incidence are high in sub-Saharan Africa, especially in Uganda, where screening rates are low, despite government policy recommending screening for all […]
- Autor: Deborah F KatururaCONCLUSION: A contextually relevant training curriculum successfully enhanced neonatal trainees' self-reported confidence in performing communication tasks in family values elicitation and integration during antenatal neonatal […]
- Autor: Pru HolderCONCLUSIONS: Support for families following a positive screening result for SCID needs to be considered. This includes tailored psychosocial support, given their experiences will not […]
- Autor: Kris Yuet Wan LokCONCLUSIONS AND RELEVANCE: In this randomized clinical trial, video call-based peer support did not increase exclusive breastfeeding at 6 months; however, it significantly increased exclusive […]
- Autor: Maximilian David MauritzCONCLUSIONS: Rare invasive infectious events were associated with a short-term rise in LP use but not with increased antibiotic treatment, suggesting a transient shift in […]
- Autor: Aysha JawedCONCLUSION: Current evidence suggests that harmonizing neonatal EOL practices could improve care quality and reduce fragmentation in EOL care coordination. We propose feasibility studies and […]
- Autor: Pedro Acosta-ManzanoCONCLUSIONS: In women with obesity, increasing MVPA and reducing ST during pregnancy is associated with higher IL-6 expression in female placentas and lower cord IL-6 […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.