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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Mervyn KohSuicide by patients can cause significant distress for the palliative care team. This includes feelings of guilt and self-blame which affect both staff morale and […]
- Autor: Nuno GonçalvesGastric metastases from solid tumors are rare and often clinically silent. When present, they typically originate from primaries such as the lung, breast, or skin. […]
- Autor: Danielle ChammasPalliative care (PC) clinicians regularly encounter a spectrum of coping strategies, from responses such as humor, legacy-building, and meaning-making to more ambivalent behaviors such as […]
- Autor: Zee Nee LimCONCLUSIONS: The Malaysian healthcare system is responding poorly to the needs of patients with very severe COPD. Raising awareness of these needs is the first […]
- Autor: Tania Ruiz-GilOBJECTIVES: This study aimed to map the actual care pathways for pediatric and adult palliative care (PC) patients at a hospital in the Region of […]
- Autor: Karen EgglestonINTRODUCTION: As one of the most rapidly aging societies globally, Korea's efforts to mitigate the social burden of Alzheimer's disease and related dementias (ADRD) may […]
- Autor: Josefine M BruunCONCLUSIONS: The study identified barriers such as mental health stigma and insufficient communication about patients' mental disorders. A patient-centred approach to cancer care, which includes […]
- Autor: Ana Bustamante-FermoselEarly initiation of palliative care in patients with advanced chronic conditions significantly improves their quality of care; however, variability in disease trajectories complicates such interventions' […]
- Autor: Clement LeclaireCONCLUSION: Among the whole population of critically ill elderly medical patients in France, the invasive approach was unknowingly associated with end-of-life care in nearly three […]
- Autor: Zixuan LiuCONCLUSIONS: Twelve studies involving 334 participants were included. Ninety-nine initial findings were extracted and categorized into eight groups. Facilitators included family support, collaboration within interdisciplinary […]
- Autor: Meng LiCONCLUSION: Patients with CVD frequently require support to manage decreased functional abilities, as well as symptoms like fatigue and breathing difficulties. With greater investment in […]
- Autor: Ingerd Irgens HynnekleivCONCLUSIONS: The study showed severe limitations in terms of the use and individualization of the NCP in the electronic health record (EHR). These limitations could […]
- Autor: Tianyu PangCONCLUSION: SDM in hospice care for advanced cancer patients was affected by multiple factors in medical practice. It is highly desirable to focus on improving […]
- Autor: Parinaz Khalili KhouzaniCONCLUSION: This study underscores the critical role of spiritual care in enhancing patients' physical, psychological, and social well-being, fostering resilience, and improving quality of life. […]
- Autor: Karen Molina-GómezCONCLUSIONS: The implementation of a palliative care program in a neonatal unit facilitates multidisciplinary care that provides comfort to patients with life-limiting conditions and supports […]
- Autor: Osama Mohamed Elsayed RamadanCONCLUSION: Compassion is crucial in mitigating neonatal palliative care nurses' emotional and ethical burdens. To sustain compassionate care, robust institutional support, culturally responsive training, and […]
- Autor: Tania Ruiz-GilOBJECTIVES: This study aimed to map the actual care pathways for pediatric and adult palliative care (PC) patients at a hospital in the Region of […]
- Autor: Ebenezer WiafeBackgroundThe practice of paediatric oncology pharmacy (POP) has been in existence in Africa for several decades. However, most POP practitioners lack formal education and training. […]
- Autor: Amy LadebueThe Advancing Symptom Alleviation with Palliative Treatment (ADAPT) trial found that a nurse and social worker palliative telecare team (providing care via phone) improved quality […]
- Autor: Chizuru NoharaCONCLUSIONS: Excessive ketogenic diets may pose some risks for patients with AN, even if they do not lead to weight loss.
- Autor: Béatrice BoutillierCONCLUSION: An interdisciplinary and multifaceted approach to addressing MoD in the NICU can be operationalized through support clinicians providing interdisciplinary and multifaceted interventions.
- Autor: Elliott Mark WeissCONCLUSION: Researchers may benefit from considering approaches to enrollment decision-making that draw on clinical decision-making methods. Future work should assess the impact of such approaches […]
- Autor: Megan ThorvilsonOBJECTIVE: Practitioners in the West care for patients from diverse backgrounds. For Muslim patients who experience end-of-life in a foreign society, it is especially prudent […]
- Autor: Karen Molina-GómezCONCLUSIONS: The implementation of a palliative care program in a neonatal unit facilitates multidisciplinary care that provides comfort to patients with life-limiting conditions and supports […]
- Autor: Karen Molina-GómezCONCLUSIONS: The implementation of a palliative care program in a neonatal unit facilitates multidisciplinary care that provides comfort to patients with life-limiting conditions and supports […]
- Autor: Osama Mohamed Elsayed RamadanCONCLUSION: Compassion is crucial in mitigating neonatal palliative care nurses' emotional and ethical burdens. To sustain compassionate care, robust institutional support, culturally responsive training, and […]
- Autor: Arezoo GhaviProfessional ethics are essential for supporting nurses in making ethical decisions and responding to current challenges. This study aimed to explore professional ethical challenges and […]
- Autor: Aurora Madrid-RodríguezCONCLUSIONS: Our study demonstrates that the use of a telemedicine program resulted in decreased scheduled face-to-face care visits and a reduction in the number of […]
- Autor: Qi ZhouCONCLUSION: Healthcare professionals should pay attention to the adverse effects of public misperceptions and negative emotions. They provide appropriate measures to enhance positive emotions and […]
- Autor: Nils DaumTo acquire ultrasound skills, students need access to educational resources for both theoretical and practical knowledge. Effective training depends on the availability of educational content, […]
- Autor: See Wan ThamINTRODUCTION: There are no validated paediatric-specific diagnostic criteria for complex regional pain syndrome (CRPS). As a result, diagnostic tools developed for adults (eg, Budapest Criteria, […]
- Autor: Erik BjørnerudCONCLUSION: The reviewed studies concerning the co-development of health technologies reported increased benefits in terms of health, agency, well-being, and strengthened children's rights in home-based […]
- Autor: Béatrice BoutillierCONCLUSION: An interdisciplinary and multifaceted approach to addressing MoD in the NICU can be operationalized through support clinicians providing interdisciplinary and multifaceted interventions.
- Autor: Elliott Mark WeissCONCLUSION: Researchers may benefit from considering approaches to enrollment decision-making that draw on clinical decision-making methods. Future work should assess the impact of such approaches […]
- Autor: Karen Molina-GómezCONCLUSIONS: The implementation of a palliative care program in a neonatal unit facilitates multidisciplinary care that provides comfort to patients with life-limiting conditions and supports […]
- Autor: Osama Mohamed Elsayed RamadanCONCLUSION: Compassion is crucial in mitigating neonatal palliative care nurses' emotional and ethical burdens. To sustain compassionate care, robust institutional support, culturally responsive training, and […]
- Autor: Chaymae YechoutiArthrogryposis multiplex congenita (AMC) is a rare condition characterized by multiple joint contractures present at birth. It results from fetal akinesia, which disrupts joint development […]
- Autor: Gianna DafflisioPatients with hypoplastic left heart syndrome often undergo a definitive decision in infancy regarding lifetime circulatory management. However, the decision between single ventricle palliation or […]
- Autor: Ramona CordaniBACKGROUND: Alternating Hemiplegia of Childhood (AHC) is a severe channelopathy that manifests before 18 months of age, primarily caused by pathogenic variants in the ATP1A3 […]
- Autor: Anne van DriesscheCONCLUSION: Our RCT suggests a limited effectiveness of a pediatric ACP intervention in changing behavioral determinants associated with ACP communication. As the study was eventually […]
- Autor: Karen Molina-GómezCONCLUSIONS: The implementation of a palliative care program in a neonatal unit facilitates multidisciplinary care that provides comfort to patients with life-limiting conditions and supports […]
- Autor: Osama Mohamed Elsayed RamadanCONCLUSION: Compassion is crucial in mitigating neonatal palliative care nurses' emotional and ethical burdens. To sustain compassionate care, robust institutional support, culturally responsive training, and […]
- Autor: Chaymae YechoutiArthrogryposis multiplex congenita (AMC) is a rare condition characterized by multiple joint contractures present at birth. It results from fetal akinesia, which disrupts joint development […]
- Autor: Ana Inês Lourenço da CostaBackground: Caring for children in palliative care especially impacts healthcare professionals' personal and professional lives. Their emotional experience and needs are frequently forgotten. Healthcare professionals […]
- Autor: Katarzyna Anna UrbańskaIntroduction: Nurses and midwives caring for newborns with lethal defects experience significant emotional stress. Understanding coping strategies and the factors influencing stress is crucial for […]
- Dobbs-driven expansion of perinatal palliative care: a scoping review of the evidence and its limitsAutor: Abigail B WilpersAs abortion care restrictions increase, a growing population is continuing pregnancies complicated by life-limiting fetal conditions, making it more critical than ever to evaluate the […]
- Autor: Liyan LuoCONCLUSIONS: This study is the first to perform a comprehensive bibliometric analysis of publications on telemedicine in newborns and NICUs. In the previous 20 years, […]
- Autor: Katarina Maciel AbathCONCLUSION: Palliative extubation was mostly performed in infants diagnosed with complex chronic conditions and severe and irreversible diseases, all of whom were referred to other […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Zajímavé monografie a odborné texty na téma dětská paliativní péče
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Zprávy z projektů nebo články v indexovaných časopisech s recenzním řízením
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.