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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Nicolas PujolRespect for autonomy is a central ethical principle in end-of-life care. However, due to cognitive decline, emotional distress, and the existential weight of end-of-life decisions, […]
- Autor: R TorenholtCONCLUSION: This study highlights nurses' critical role in nurturing patient trust and identifies important contextual factors for improving care targeting vulnerable cancer patients.
- Autor: Anja LeePalliative care should be an integral part of follow-up for patients with life-limiting/life-threatening conditions, irrespective of age and diagnosis. Many patients with inherited metabolic disorders […]
- Autor: Benjamin KrichevskyCONCLUSIONS: ChatGPT's responses to real-world pharmacotherapeutic queries were substantially inferior compared to conventional physician-generated responses with regard to quality of information and factual correctness. Our […]
- Autor: Kalok WongCONCLUSIONS: The findings demonstrated ACP has both positive and negative aspects for older adults and provided a nuanced and detailed picture of the complex family […]
- Autor: Chloe AppsCONCLUSIONS: Findings from this study highlight the importance attributed to driving resumption and the challenges associated with this activity for individuals recovering from critical illness. […]
- Temporal trends and regional variation in the use of palliative care after colorectal cancer surgeryAutor: Elsa KronenCONCLUSIONS: Palliative care after surgery for colorectal cancer has increased over time but remains infrequent. Minority race and geographic region remain associated with reduced use. […]
- Autor: D C CurrowINTRODUCTION: Chronic dyspnoea is subjective but with objective (measurable) consequences. It is often poorly assessed because people have modified their lifestyles to avoid exertion that […]
- Autor: Chloe AppsCONCLUSIONS: Findings from this study highlight the importance attributed to driving resumption and the challenges associated with this activity for individuals recovering from critical illness. […]
- Autor: E C GriffithsINTRODUCTION: In Aotearoa New Zealand, prefilled syringes for patients receiving palliative care in the community can be prepared (compounded) by certain pharmacies. Currently, there is […]
- Autor: Chi Eung Danforn LimINTRODUCTION: Palliative care addresses the comprehensive needs of advanced-stage cancer patients, enhancing their quality of life. However, due to cultural and linguistic differences, Chinese Australians […]
- Autor: Thomas Grice-JacksonPURPOSE OF THE REVIEW: While the benefits and need for integrating palliative care (PC) services into heart failure (HF) care have been well recognized, integration […]
- Autor: Faith D HowardCONCLUSION: By utilising the CFIR, the study highlights the complexities and variabilities of using PROMs with OPWSF. Future research should focus on adapting and validating […]
- Autor: Na OuyangNo abstract
- Autor: MSc Tessa D BergmanCONCLUSIONS: Information meetings about end-of-life care stimulate older people to have ACP conversations with GPs and relatives and document wishes. The type of meeting, by […]
- Autor: Rebecca J DeBoerCONCLUSION: Despite vast cultural differences, communication training interventions developed in the U.S. can be effectively adapted in African contexts through co-creation with local providers.
- Autor: Anja LeePalliative care should be an integral part of follow-up for patients with life-limiting/life-threatening conditions, irrespective of age and diagnosis. Many patients with inherited metabolic disorders […]
- Autor: Emilie Groulx-BoivinClinical trials in spinal muscular atrophy (SMA) have shown that early treatment improves outcomes, prompting inclusion in newborn screening (NBS) programs worldwide. The province of […]
- Autor: Adam RapoportCONCLUSION: At the time of their child's death, most families who responded to an online survey had unused opioids in their home, some of which […]
- Autor: C N MartinBACKGROUND: Cancer survivors in Germany face considerable challenges related to the late and long-term effects of treatment and a lack of post-treatment support. Despite an […]
- Autor: Yanchao WuCONCLUSIONS: The P-FBDT demonstrated promising feasibility, acceptability, and potential effectiveness. Larger randomized controlled trials are necessary to confirm its efficacy and inform future implementation.
- Autor: Sarah E MonickAdolescents and young adults (AYA; ages 15-39) with acute leukemia have significant unmet supportive care needs. This pilot study integrated same-day palliative care (PC) into […]
- Autor: Olga NigroCONCLUSIONS: Management of a "complex" pediatric patient with an unfavorable prognosis requires early activation of PPC, with a seamless continuation of the already existing partnerships […]
- Autor: Susan K ParsonsIn this review on the status of tolerability in pediatric oncology, the authors address the relevance and meaning of this important concept and offer a […]
- Autor: Emilie Groulx-BoivinClinical trials in spinal muscular atrophy (SMA) have shown that early treatment improves outcomes, prompting inclusion in newborn screening (NBS) programs worldwide. The province of […]
- Autor: C N MartinBACKGROUND: Cancer survivors in Germany face considerable challenges related to the late and long-term effects of treatment and a lack of post-treatment support. Despite an […]
- Autor: Yanchao WuCONCLUSIONS: The P-FBDT demonstrated promising feasibility, acceptability, and potential effectiveness. Larger randomized controlled trials are necessary to confirm its efficacy and inform future implementation.
- Autor: Eliana AlweisBoard games and gamification – the application of game-like elements to non-game contexts – have emerged as promising strategies in healthcare for enhancing education, promoting […]
- Autor: Alexander Lloyd Sy NgAmong the many barriers to universal access to palliative care is the lack of research. This is most prominent in low-to-middle-income countries such as the […]
- Autor: Melanie L RolfeThe diagnosis of a childhood brain tumor impacts the psychological well-being of parents who experience high levels of post-traumatic stress. To understand the etiology of […]
- Autor: Isabelle ErniCONCLUSIONS: The IBIS SMART Aim to reduce IVH failed. Simultaneously, survival was significantly increased by the increased provision of life-sustaining intensive care at lower GAs, […]
- Autor: Bénédicte BrichardCONCLUSION: NICU professionals face significant moral and emotional burdens in PPC. Strengthening training, enhancing team cohesion, and promoting earlier PPC integration may improve both care […]
- Autor: Emilie Groulx-BoivinClinical trials in spinal muscular atrophy (SMA) have shown that early treatment improves outcomes, prompting inclusion in newborn screening (NBS) programs worldwide. The province of […]
- Autor: Carmen G MorovicHeteropagus (parasitic) twins are rare congenital anomalies characterized by a malformed parasitic twin attached to an otherwise normally developed host. Epignathus is a rare oropharyngeal […]
- Autor: Isabelle ErniCONCLUSIONS: The IBIS SMART Aim to reduce IVH failed. Simultaneously, survival was significantly increased by the increased provision of life-sustaining intensive care at lower GAs, […]
- Autor: Bénédicte BrichardCONCLUSION: NICU professionals face significant moral and emotional burdens in PPC. Strengthening training, enhancing team cohesion, and promoting earlier PPC integration may improve both care […]
- Autor: Dorleta Lopez de Suso Martinez de AguirreCONCLUSIONS: Tools like Expanded PedCom can standardise the classification of children with CCC, supporting tailored resource allocation and global comparisons. Incorporating such tools into healthcare […]
- Autor: Kaat De BackerCONCLUSIONS: In this UK population cohort, socio-economic and ethnic disparities were observed between those in contact with child protection agencies during pregnancy and those without. […]
- Autor: Caitlin J Cain-TrivettePediatric extracorporeal membrane oxygenation (ECMO) decannulation practices vary widely regarding ligation versus repair of the common carotid artery (CCA) and internal jugular vein (IJV) with […]
- A systematic review of perinatal palliative care models: challenges and opportunities for the futureAutor: Anna ZaninCONCLUSION: Early, integrated PnPC delivered by a multidisciplinary team improves end-of-life care and family support in the NICU. However, significant heterogeneity in practice and a […]
- Autor: Emilie Groulx-BoivinClinical trials in spinal muscular atrophy (SMA) have shown that early treatment improves outcomes, prompting inclusion in newborn screening (NBS) programs worldwide. The province of […]
- Autor: Isabelle ErniCONCLUSIONS: The IBIS SMART Aim to reduce IVH failed. Simultaneously, survival was significantly increased by the increased provision of life-sustaining intensive care at lower GAs, […]
- Autor: Bénédicte BrichardCONCLUSION: NICU professionals face significant moral and emotional burdens in PPC. Strengthening training, enhancing team cohesion, and promoting earlier PPC integration may improve both care […]
- Autor: Kaat De BackerCONCLUSIONS: In this UK population cohort, socio-economic and ethnic disparities were observed between those in contact with child protection agencies during pregnancy and those without. […]
- A systematic review of perinatal palliative care models: challenges and opportunities for the futureAutor: Anna ZaninCONCLUSION: Early, integrated PnPC delivered by a multidisciplinary team improves end-of-life care and family support in the NICU. However, significant heterogeneity in practice and a […]
- Autor: Abel F DadiAnxiety is the most common complication of pregnancy and childbirth and is reported to have a plethora of adverse maternal, birth, and childhood outcomes. There […]
- Autor: Maren BrinkenCONCLUSIONS: Doppler velocity reconstruction can assess RV intracardiac flow in infants in HLHS interstage I. While the results should not be used to interpret the […]
- Autor: Diana PereiraNonketotic hyperglycinemia (NKH) is a rare autosomal recessive metabolic disorder characterized by defective glycine cleavage, resulting in glycine accumulation, particularly in the central nervous system. […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.