UP TO DATE
Nejnovější mezinárodní publikace o paliativní péči
- Autor: Daisuke FujisawaCONCLUSION: The impact of grief on productivity loss was comparable with that of mild to moderate depression. Both the severity of grief and depression were […]
- Autor: Morgan E FreretCONCLUSIONS: The IROC service was associated with reduced hospital LOS, increased use of hypofractionated approaches, and decreased treatments for patients discharged to hospice. Our findings […]
- Autor: Lindsay SullivanCONCLUSIONS: This study provides a deeper understanding of the negative effect chronic pain can have on adolescents and family life. Our findings call for interventions […]
- Autor: Chia-Chuan ChangBACKGROUND: Pan-valvular heart disease involving both native and prosthetic valves is rare and challenging to manage, especially in frail patients with limited treatment options.
- Autor: Wajid AliCONCLUSION: Uptake of PC in PAH is low due to patient and physician-level barriers, which can be overcome with systematic PC integration. Long-term studies are […]
- Autor: Lyudmila YermukhanovaCONCLUSION: Unmet needs among older Kazakhs are linked to lower education and informal care. Expanding formal care and targeted interventions are essential for supporting the […]
- Autor: Emily Louise BoucherBACKGROUND: Older people account for a growing proportion of unplanned hospital admissions and many have complex conditions. However, there are few data on cognitive morbidity […]
- Autor: Sultan M AlshahraniCONCLUSION: Community pharmacists in the Aseer region show strong willingness but limited preparedness for palliative care services. Addressing training deficiencies through structured modules and continuing […]
- Autor: Linde GoossensCONCLUSIONS: Both parents and healthcare providers pointed out the need for a multidisciplinary team to coordinate PPC across time and disciplines. Parents expressed more dissatisfaction […]
- Autor: Fahad SaeedNo abstract
- Autor: Pilar Barnestein-FonsecaCONCLUSIONS: All stakeholder groups recognized new technologies as useful for volunteer support in palliative care, with the highest perceived usefulness among professionals and volunteers. However, […]
- Autor: Leslye Rojas-ConchaNo abstract
- Autor: Darius Wei Jun WanCONCLUSION: Beyond short-term well-being interventions to mitigate mental health challenges, this study highlights the importance of nurturing the internal compass through longitudinal, individualised and context-sensitive […]
- Autor: Malte KlemmtBACKGROUND: The bioethical principle of respect for patients' autonomy should be implemented in every area of health care. The German rehabilitation system has some characteristics […]
- Autor: Wanting XiaNo abstract
- Autor: Waichi LoCONCLUSION: Spiritual health is a critical component of the comprehensive treatment of patients with advanced cancer. Narrative research effectively elucidates patients' spiritual demands and coping […]
- Autor: Maria AyoubBACKGROUND AND PURPOSE: The psychosocial needs of migrant families affected by a child's severe -illness are extensive. However, few family-centred interventions have been evaluated and […]
- Autor: Lindsay SullivanCONCLUSIONS: This study provides a deeper understanding of the negative effect chronic pain can have on adolescents and family life. Our findings call for interventions […]
- Autor: Naoko MoriPediatric brain tumors are the leading cause of cancer-related deaths in children, and cause unique suffering by degrading the neurological functions essential to a child's […]
- Autor: Philip BlumenfeldCraniospinal irradiation (CSI) is a technically demanding treatment in pediatric oncology, especially for young children, who often require daily anesthesia. Although proton therapy offers dosimetric […]
- Autor: Simen Alexander SteindalCONCLUSIONS: Children with cancer and their families are the most frequently reported users of health technology for communicating with HCPs in home-based PPC. However, research […]
- Autor: Yi QiaoCONCLUSION: Results provide a framework for optimizing mBTTS design to reduce thrombosis risk based on hemodynamic risk factors, including actionable recommendations for shunt placement and […]
- Autor: Jaime LindseyCONCLUSIONS: That mediation can be used in paediatric best interests disputes with a religious dimension and that mediators should develop further ways of delineating which […]
- Autor: Holly E EvansCONCLUSION: Participants with ovarian cancer viewed prognostic testing positively. However, successful implementation will require a patient-centred approach that accommodates diverse preferences around how the test […]
- Autor: Philip BlumenfeldCraniospinal irradiation (CSI) is a technically demanding treatment in pediatric oncology, especially for young children, who often require daily anesthesia. Although proton therapy offers dosimetric […]
- Autor: Simen Alexander SteindalCONCLUSIONS: Children with cancer and their families are the most frequently reported users of health technology for communicating with HCPs in home-based PPC. However, research […]
- Autor: Jaime LindseyCONCLUSIONS: That mediation can be used in paediatric best interests disputes with a religious dimension and that mediators should develop further ways of delineating which […]
- Autor: Holly E EvansCONCLUSION: Participants with ovarian cancer viewed prognostic testing positively. However, successful implementation will require a patient-centred approach that accommodates diverse preferences around how the test […]
- Autor: Daniel H GrossoehmeCONCLUSIONS: Caregivers will disclose sensitive information for health care research, providing evidence for subsequent, adequately powered studies to inform policy-making. While underpowered for between-group analyses, […]
- Autor: Y Y TanCarnitine palmitoyltransferase II (CPT II) deficiency is a rare inherited disorder of mitochondrial oxidation of long-chain fatty acids (LCFA). Carnitine is the sole carrier of […]
- Autor: Farzaneh TaghaeeCONCLUSION: As evidenced, healthcare policymakers and clinical instructors should develop and implement appropriate CB training programs for nursing students to promote the quality of patient […]
- Autor: Mahmasoni MasdarMoral distress is a prevalent and disruptive force in palliative care practice, undermining clinicians' capacity to uphold ethical integrity amid systemic and situational constraints. As […]
- Autor: Linde GoossensCONCLUSIONS: Both parents and healthcare providers pointed out the need for a multidisciplinary team to coordinate PPC across time and disciplines. Parents expressed more dissatisfaction […]
- Autor: Jaime LindseyCONCLUSIONS: That mediation can be used in paediatric best interests disputes with a religious dimension and that mediators should develop further ways of delineating which […]
- Autor: Danielle SchoenakerCONCLUSION: Based on observational evidence, increasing access to preconception care could be beneficial to optimize maternal nutrition and weight-related outcomes, and addressing obesity and GWG […]
- Autor: Y Y TanCarnitine palmitoyltransferase II (CPT II) deficiency is a rare inherited disorder of mitochondrial oxidation of long-chain fatty acids (LCFA). Carnitine is the sole carrier of […]
- Autor: Taryn L LuitinghCONCLUSION: Personalised provisions of love and care were dignities parents could warmly reflect back on during their bereavement. Importantly, tailoring memory making practices to the […]
- Autor: Lihua WenHigh-frequency oscillation ventilation (HFOV) is a commonly used therapeutic modality in the pediatric intensive care unit, and this study aims to investigate the clinical characteristics […]
- Autor: Elizabeth G Broden ArcipreteCONCLUSIONS: Most included studies targeted clinician outcomes through education. Designing, testing, and implementing interventions focused on family outcomes is a critical next step.
- Autor: Kerstin KnightBased on an analysis of a case study from a Victorian case of neonatal hypoxic ischaemic encephalopathy (HIE), I want to propose that in some […]
- Autor: Linde GoossensCONCLUSIONS: Both parents and healthcare providers pointed out the need for a multidisciplinary team to coordinate PPC across time and disciplines. Parents expressed more dissatisfaction […]
- Autor: Jaime LindseyCONCLUSIONS: That mediation can be used in paediatric best interests disputes with a religious dimension and that mediators should develop further ways of delineating which […]
- Autor: Y Y TanCarnitine palmitoyltransferase II (CPT II) deficiency is a rare inherited disorder of mitochondrial oxidation of long-chain fatty acids (LCFA). Carnitine is the sole carrier of […]
- Autor: Lihua WenHigh-frequency oscillation ventilation (HFOV) is a commonly used therapeutic modality in the pediatric intensive care unit, and this study aims to investigate the clinical characteristics […]
- Autor: Elizabeth G Broden ArcipreteCONCLUSIONS: Most included studies targeted clinician outcomes through education. Designing, testing, and implementing interventions focused on family outcomes is a critical next step.
- Autor: Shirley Du YanAlthough India's health outcomes have improved, progress can still be made to reduce the health burden from tuberculosis, noncommunicable diseases, and maternal and neonatal health. […]
- Autor: Vinami YulianCONCLUSIONS: The Desa SIAGA programme could bring benefits to improve MNH outcomes through the active participation of the community, but this will remail limited unless […]
- Autor: Katarzyna UrbanskaCONCLUSIONS: These findings highlight the need for structured education focused not only on clinical skills but also on emotional preparedness. Psychological support systems should be […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.