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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Hannah AhrensbergChronic non-cancer pain drives many to seek complementary and alternative medicine, yet its usage remains poorly understood. This study aimed assessing trends in complementary and […]
- Autor: Javad RazjouyanCONCLUSIONS: Integrating cross-sectional FI and longitudinal FT offers a comprehensive assessment of frailty in HF patients, improving risk stratification and disease management.
- Autor: Risheng XuCONCLUSIONS: Endovascular embolization is a promising minimally invasive strategy for pediatric patients with refractory epilepsy, particularly when anatomical or medical considerations preclude traditional surgery. Further […]
- Autor: Sophie Nilusha HolmesCONCLUSION: The crucial next step is for medical education to acknowledge that requests to conceal diagnoses happen. We need to provide a communication strategy for […]
- Autor: Jonas PietschCONCLUSIONS: EPAs are increasingly developed and implemented in nursing education. There seem to be overlaps between EPAs mainly covering the steps of the nursing care […]
- Autor: Natàlia PallarèsCONCLUSIONS: In patients without ceiling of care, mortality decreased over time, suggesting better disease knowledge and management. In ceiling of care, only fourth wave patients […]
- Autor: Abigail G CohenCONCLUSIONS: Oncology nurses described early nursing career experiences of patients as the greatest teachers and shared invaluable and transformative lessons learned about what it means […]
- Autor: Yarden S FraimanThere are significant racial and ethnic inequities in neonatal care. These inequities are the result of the multiple levels of racism: structural, institutional, interpersonal, and […]
- Autor: Kevin O MurrayExcess cellular senescence contributes to age-related increases in frailty and reductions in skeletal muscle strength. In the present study, we determined the efficacy of oral […]
- Alpha-2 agonists for refractory neurological symptoms in pediatric palliative care: a scoping reviewAutor: Annalisa SalernoCONCLUSION: Alpha-2 agonists are increasingly being used to manage intractable neurological symptoms in pediatric palliative care. However, evidence regarding their safety profile and effectiveness remains […]
- Autor: Suzanne PoulgrainColorectal cancer during pregnancy is a rare event; but given the well-recognised increasing incidence of young onset colorectal cancer and delayed child-bearing seen in the […]
- Autor: A BarnesNo abstract
- Autor: Ľubomír SkladanýCONCLUSION: The impact of day 7 LFI on the survival of patients with ACLF is notable. Nevertheless, it does not markedly enhance the predictive capability […]
- Autor: Ye Sul JeungINTRODUCTION: Critically ill patients in intensive care units (ICUs) receive life-sustaining treatments aimed at restoring or maintaining organ function. ICU admission often involves substantial multidimensional […]
- Autor: Philip K EhrenbergEliminating latent HIV-1 is a major goal of AIDS research but host factors determining the size of these reservoirs are poorly understood. Here, we investigate […]
- Autor: Juan Luis Torres-TenorCONCLUSIONS: A total of 38% of patients with cancer receiving specialized palliative care required PS before death. Patients who received PS were younger, had a […]
- Autor: Sara Alcón-NájeraCONCLUSIONS: The experience of the death of a child in a Pediatric Intensive Care Unit must ensure a peaceful, dignified, and respectful death, accompanied and […]
- Autor: Ateya Megahed IbrahimOBJECTIVES: End-of-life care poses significant ethical challenges for nurses, requiring a deep understanding of moral empathy and ethical decision-making. This study examines the impact of […]
- Autor: Risheng XuCONCLUSIONS: Endovascular embolization is a promising minimally invasive strategy for pediatric patients with refractory epilepsy, particularly when anatomical or medical considerations preclude traditional surgery. Further […]
- Autor: Abigail G CohenCONCLUSIONS: Oncology nurses described early nursing career experiences of patients as the greatest teachers and shared invaluable and transformative lessons learned about what it means […]
- Autor: Yarden S FraimanThere are significant racial and ethnic inequities in neonatal care. These inequities are the result of the multiple levels of racism: structural, institutional, interpersonal, and […]
- Autor: Idoya Serrano-PejenauteCONCLUSION: A considerable proportion of admissions among children was attributed to patients with C-CD and LLC. Both exhibited substantial utilization of hospital resources and high […]
- Autor: Joëlle R KosterCONCLUSIONS: The HRQoL of operated Tanzanian children with CHD differed significantly from that of their unoperated counterparts. Reducing symptoms for those on the waiting list […]
- Autor: Talia ShearTo provide the best possible care, neurologists must have a thorough understanding of the social and historical context of disability. Knowledge of the biology of […]
- Alpha-2 agonists for refractory neurological symptoms in pediatric palliative care: a scoping reviewAutor: Annalisa SalernoCONCLUSION: Alpha-2 agonists are increasingly being used to manage intractable neurological symptoms in pediatric palliative care. However, evidence regarding their safety profile and effectiveness remains […]
- Autor: Ashley MoweryGenetic testing is rapidly becoming standard practice in the care of critically ill newborns within NICUs. Numerous studies have demonstrated the utility of genetic testing, […]
- Autor: Karen ShawBACKGROUND: In England, Child Death Review (CDR) is a statutory process designed to identify full reasons for death, support parents, improve care and save lives. […]
- Autor: Vitor MendesCONCLUSION: Successful pulmonary valve-sparing repair was associated with lower BMI and a larger pulmonary valve annulus (both measurements in centimeters and Z-score). These findings may […]
- Autor: Chanjuan DengCONCLUSIONS: Legacy-making interventions could benefit children, their families, and healthcare professionals. More rigorous clinical trials should be conducted to confirm the effects of these interventions […]
- Autor: Rozina IqbalCONCLUSIONS: The most frequent outcome after TLD was withdrawal of life-sustaining support. The majority of babies did not survive following TLD, irrespective of the code […]
- Autor: Paul TakahashiCONCLUSION: The relationship between SES and consent rates might be disproportionately greater in historically disadvantaged groups, compared to non-Hispanic White. It suggests that instead of […]
- Autor: Sophie BertaudCONCLUSIONS: Clinical and ethical scholarship in palliative care reveals a valuable but still underexplored connection between the ethical commitments within the ethics of care tradition […]
- Autor: J PetersonINTRODUCTION: Advances in neonatal care have resulted in improved survival rates for periviable infants (22 + 0-23 + 6 weeks) with increasing numbers being admitted […]
- Autor: J PetersonBACKGROUND: Survival rates and clinical approach to periviable infants are rapidly evolving at certain centres, but there remains variation in definition, approach and management of […]
- Autor: Yarden S FraimanThere are significant racial and ethnic inequities in neonatal care. These inequities are the result of the multiple levels of racism: structural, institutional, interpersonal, and […]
- Autor: Idoya Serrano-PejenauteCONCLUSION: A considerable proportion of admissions among children was attributed to patients with C-CD and LLC. Both exhibited substantial utilization of hospital resources and high […]
- Autor: Ashley MoweryGenetic testing is rapidly becoming standard practice in the care of critically ill newborns within NICUs. Numerous studies have demonstrated the utility of genetic testing, […]
- Autor: Rozina IqbalCONCLUSIONS: The most frequent outcome after TLD was withdrawal of life-sustaining support. The majority of babies did not survive following TLD, irrespective of the code […]
- Autor: Béatrice BoutillierCONCLUSION: An interdisciplinary and multifaceted approach to addressing MoD in the NICU can be operationalized through support clinicians providing interdisciplinary and multifaceted interventions.
- Autor: Elliott Mark WeissCONCLUSION: Researchers may benefit from considering approaches to enrollment decision-making that draw on clinical decision-making methods. Future work should assess the impact of such approaches […]
- Autor: Ashley MoweryGenetic testing is rapidly becoming standard practice in the care of critically ill newborns within NICUs. Numerous studies have demonstrated the utility of genetic testing, […]
- Autor: Rozina IqbalCONCLUSIONS: The most frequent outcome after TLD was withdrawal of life-sustaining support. The majority of babies did not survive following TLD, irrespective of the code […]
- Autor: Karen Molina-GómezCONCLUSIONS: The implementation of a palliative care program in a neonatal unit facilitates multidisciplinary care that provides comfort to patients with life-limiting conditions and supports […]
- Autor: Osama Mohamed Elsayed RamadanCONCLUSION: Compassion is crucial in mitigating neonatal palliative care nurses' emotional and ethical burdens. To sustain compassionate care, robust institutional support, culturally responsive training, and […]
- Autor: Chaymae YechoutiArthrogryposis multiplex congenita (AMC) is a rare condition characterized by multiple joint contractures present at birth. It results from fetal akinesia, which disrupts joint development […]
- Autor: Ana Inês Lourenço da CostaBackground: Caring for children in palliative care especially impacts healthcare professionals' personal and professional lives. Their emotional experience and needs are frequently forgotten. Healthcare professionals […]
- Autor: Katarzyna Anna UrbańskaIntroduction: Nurses and midwives caring for newborns with lethal defects experience significant emotional stress. Understanding coping strategies and the factors influencing stress is crucial for […]
- Dobbs-driven expansion of perinatal palliative care: a scoping review of the evidence and its limitsAutor: Abigail B WilpersAs abortion care restrictions increase, a growing population is continuing pregnancies complicated by life-limiting fetal conditions, making it more critical than ever to evaluate the […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Zajímavé monografie a odborné texty na téma dětská paliativní péče
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Zprávy z projektů nebo články v indexovaných časopisech s recenzním řízením
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.