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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Maelle BiotteauSpinal muscular atrophy (SMA) is a devastating early-onset genetic disease characterized by motor neuron degeneration. For several years, an early access program has facilitated the […]
- Autor: Michael BonaresCONCLUSION: Younger age and not having non-invasive ventilation at the time of consultation may suggest a higher risk of goal-discordant end-of-life care and the need […]
- Autor: Lorenza MagagnoliCONCLUSION: Among older men and women with advanced CKD not receiving dialysis, the presence of hyperphosphatemia, especially when combined with hypocalcemia and hyperparathyroidism, leads to […]
- Autor: Susannah McleanCONCLUSIONS: Collaboration on the digital ReSPECT accelerated deployment, enabling more people's wishes and clinical recommendations to be captured and shared across care settings and transitions. […]
- Autor: Masami Tabata-KellyCONCLUSIONS: These findings highlight the need to address patient health-related social needs, support nurses to conduct conversations, and promote an environment that supports nurses' well-being.
- Autor: Marcin MiszczykThis review examines established and evolving approaches for radiation therapy as a palliative treatment modality in patients with pancreatic cancer within the context of effective […]
- Autor: Mymy TranCONCLUSIONS: The ILD-PC clinic incorporates a multidisciplinary, patient-centred approach to ILD care by enabling early access to symptom management, community services and advance care planning.
- Autor: Mengmeng ChenCONCLUSIONS: The findings indicate a relative scarcity of hospice physicians in China with experience in palliative sedation, with many encountering significant stress during its implementation. […]
- Autor: Anna A MassaweCONCLUSION: Despite limited awareness and sociocultural taboos around death, ACP was viewed as meaningful by patients with advanced illness. Further studies are needed to evaluate […]
- Autor: Sharon KaasalainenCONCLUSION: The SPA-LTC program appears to be feasible on some key activities and supports a family-centered approach to care, which relies on strong communication. Future […]
- Autor: Parth SharmaCONCLUSION: The study highlights the significant need for home-based palliative care in urban areas and the financial hardship families face. There is a need for […]
- Autor: Yinshi KanCONCLUSIONS AND RELEVANCE: In this qualitative study, quality home end-of-life care in China can be described as a dynamic process of building and maintaining trust […]
- Autor: Redwan NeshaCONCLUSION: Approximately one-fifth of the participants experienced prolonged in hospital stays. Therefore, clinical practitionars, hospital administrators and respective stackholders could significantly reduce the childrens length […]
- Autor: Silvia Maria de Macedo BarbosaCONCLUSION: Despite exceptional accuracy, discrepant values should be considered with caution. This study should be replicated in a larger sample.
- Autor: Cristiano Inácio MartinsCONCLUSIONS: The profile found highlighted the vulnerability of the elderly population, the complexity of the cases treated and the need for specific hospital management strategies. […]
- Autor: Sarah P BowersCONCLUSION: People dying with multiple long-term health conditions have particularly high use of unscheduled care in the last year of life, likely reflecting unmet need. […]
- Autor: Maelle BiotteauSpinal muscular atrophy (SMA) is a devastating early-onset genetic disease characterized by motor neuron degeneration. For several years, an early access program has facilitated the […]
- Autor: Loneke T Blackman CarrCONCLUSIONS: Future research may be impactful when multilevel approaches are undertaken that leverage equity-minded tools and can be scaled up to meet community-informed population needs […]
- Autor: Mikaila T LaneContext: Artificial intelligence (AI), particularly large language models (LLMs), offers the potential to augment clinical decision-making, including in palliative care pharmacy, where personalized treatment and […]
- Autor: Redwan NeshaCONCLUSION: Approximately one-fifth of the participants experienced prolonged in hospital stays. Therefore, clinical practitionars, hospital administrators and respective stackholders could significantly reduce the childrens length […]
- Autor: Na OuyangCONCLUSION: Parental preparation for EOL is often prompted by external factors, resulting in both internal and external actions. Parents identified specific factors that contributed to […]
- Autor: Annalisa SalernoCONCLUSION: Our findings support the feasibility and clinical relevance of a structured, interdisciplinary paediatric pain clinic for managing chronic and complex pain. While most paediatric […]
- Autor: Laurel KentPatients undergoing hematopoietic stem cell transplant are at risk for significant morbidity and mortality throughout their treatment course. The aim of this evidence-based practice project […]
- Autor: Gözde ÖnalCONCLUSION: The findings suggest that occupational therapy may support children's participation in activities of daily living and ease caregiver burden in pediatric palliative care. Interventions […]
- Autor: Redwan NeshaCONCLUSION: Approximately one-fifth of the participants experienced prolonged in hospital stays. Therefore, clinical practitionars, hospital administrators and respective stackholders could significantly reduce the childrens length […]
- Autor: Camara Van BreemenCONCLUSIONS: The addition of family facilitators in the delivery of SICG-Peds workshops enhanced clinicians' learning. Moreover, bereaved parents reported that functioning as workshop facilitators was […]
- Autor: Hunter BechtoldINTRODUCTION: Residents frequently conduct code status discussions (CSDs) with patients, but many report not receiving formal training in this skill. While institutions have attempted to […]
- Autor: Stephanie M SmithAdolescent and young adult (AYA) cancer survivors represent a vulnerable population in cancer care and survivorship. AYA survivors are a heterogeneous group that includes people […]
- Autor: Kayoko MorioCONCLUSIONS: Pharmacists were actively engaged in pain management for children with cancer and their families. However, most reported difficulties, particularly in pain assessment and analgesic […]
- Autor: Zouheir Ibrahim BitarPneumatosis intestinalis (PI) is characterized by the presence of air within the walls of the small intestine, large intestine, and sometimes the gastric wall. The […]
- Autor: Nathaniel E HaywardINTRODUCTION: The negative effects of microaggressions on patient care, provider well-being, and medical education are well-documented. Critically evaluated programs addressing microaggressions remain largely absent in […]
- Autor: Silvia Aranda-GarcíaNo abstract
- Autor: Silvia Maria de Macedo BarbosaCONCLUSION: Despite exceptional accuracy, discrepant values should be considered with caution. This study should be replicated in a larger sample.
- Autor: Jacqueline PlazinaCONCLUSIONS: Babies being transferred for palliative care can be safely managed while receiving kangaroo cuddle, with the support of an experienced neonatal transfer team.
- Autor: Rosa VerhoevenCONCLUSION: Our findings suggest that Q-methodology can reveal meaningful patterns in how parents approach critical medical decisions. These insights could inform the development of a […]
- Autor: Francesca BenedettiPediatric palliative care (PPC) aims to enhance the quality of life of children with life-limiting conditions and their families through individualized, interdisciplinary support. Among this […]
- Autor: Katherine GuttmannCONCLUSIONS: Findings highlight the structural, cultural, and clinical changes needed to promote team-based care. Interprofessional communication skills trainings, training in trauma-informed care, primary intensivist models, […]
- Autor: Richard MattockCONCLUSIONS: High midwifery workload may alter care provision, potentially affecting mother and baby outcomes. Further robust research is needed to address limitations in current evidence.
- Autor: Hannah TredwayCONCLUSIONS: Patients with CCHD experience significant morbidity and mortality. Given the underutilization of subspecialty PC upon prenatal diagnosis of CCHD, implementation of routine PC consultation […]
- Autor: Hee Su ParkCONCLUSIONS: In an overwhelming majority of visits, PPC clinicians address psychological symptoms. The psychological domains within PPC practice are wide-ranging and likely incompletely recognized. Gaps […]
- Autor: Silvia Maria de Macedo BarbosaCONCLUSION: Despite exceptional accuracy, discrepant values should be considered with caution. This study should be replicated in a larger sample.
- Autor: Rosa VerhoevenCONCLUSION: Our findings suggest that Q-methodology can reveal meaningful patterns in how parents approach critical medical decisions. These insights could inform the development of a […]
- Autor: Francesca BenedettiPediatric palliative care (PPC) aims to enhance the quality of life of children with life-limiting conditions and their families through individualized, interdisciplinary support. Among this […]
- Autor: Richard MattockCONCLUSIONS: High midwifery workload may alter care provision, potentially affecting mother and baby outcomes. Further robust research is needed to address limitations in current evidence.
- Autor: Verónica IzquierdoCONCLUSIONS: CGM might be a useful point-of-care tool that provides valuable information that may help clinicians to make timely management decisions. The ability of CGM […]
- Autor: Rebecca M PearsonThis study aims to explore the influence of genetic similarity for neuroticism liability in mother's reported quality of relationship with her child and partner. Such […]
- Autor: Kirsty JaneINTRODUCTION: Neonatal intensive care is a traumatic environment for parents, infants and staff. Services need to collaborate with their users to develop acceptable and sustainable […]
- Autor: Mihaela Hizanu DumitracheBackground and Objectives: Estimating the need for palliative care for children is a crucial step in addressing the needs of children facing life-threatening conditions, while […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.