UP TO DATE
Nejnovější mezinárodní publikace o paliativní péči
- Autor: Michelle Uchida MiwaOBJECTIVES: Dignity Therapy (DT) helps reframe and give meaning to the illness process of the terminally ill individual. This study aims to evaluate the effect […]
- Autor: Marija LjubičićCONCLUSION: Providing palliative nursing care was associated with higher levels of occupational stress. Stress may trigger adverse health consequences such as the development of anxiety, […]
- Autor: Swasati HandiqueOBJECTIVES: The purpose of this study is to examine the existing literature on end-of-life dream experiences and bucket list fulfillments among terminally ill individuals receiving […]
- Autor: Minna DevantierCONCLUSIONS: Siblings of children with cancer face significant, interconnected challenges, often amplified by the structural frameworks of healthcare, family and school contexts.
- Autor: Antoinette V ChateauCONCLUSION: A transdisciplinary approach is essential for the holistic care of patients and their families with EB in the context of their resource limitations and […]
- Autor: Carolina Jorge GonçalvesHealth encompasses physical, psychosocial, cultural, economic, and spiritual well-being. Spirituality is a dynamic, personal dimension that, when nurtured, can enable the individual to feel balanced […]
- Autor: Sarvadarshi Saraswata MahapatraPerineal pain in patients with pelvic malignancies, such as rectal cancer, can be debilitating and significantly impair quality of life. The ganglion impar block (GIB) […]
- Autor: Mengmeng ChenCONCLUSIONS: The findings indicate a relative scarcity of hospice physicians in China with experience in palliative sedation, with many encountering significant stress during its implementation. […]
- Autor: Jan GaertnerNo abstract
- Autor: Daniel GilbeyCONCLUSIONS: In this report, we highlight the challenges faced by clinical teams diagnosing and managing delirium, in particular when a language barrier is present. Non-invasive […]
- Autor: Nishitha Reddyancreatic cancer is an aggressive disease and often presents at an advanced stage with no curative options. The disease is often characterized by rapid progression, […]
- Autor: Joy OgunmuyiwaNo abstract
- Autor: Matteo MoroniCONCLUSION: The attitude towards antibiotic prescription at the end of life is influenced by many factors, including the physician's background and setting. Case-by-case decision-making and […]
- Autor: Shoko MasuyamaCONCLUSION: Japanese-style acupuncture, with relatively finer needles and gentler stimulation, has shown promise as a palliative treatment for patients with cancer, potentially offering temporary relief […]
- Autor: Susannah McleanCONCLUSIONS: Collaboration on the digital ReSPECT accelerated deployment, enabling more people's wishes and clinical recommendations to be captured and shared across care settings and transitions. […]
- Autor: Mengmeng ChenCONCLUSIONS: The findings indicate a relative scarcity of hospice physicians in China with experience in palliative sedation, with many encountering significant stress during its implementation. […]
- Autor: Minna DevantierCONCLUSIONS: Siblings of children with cancer face significant, interconnected challenges, often amplified by the structural frameworks of healthcare, family and school contexts.
- Autor: Antoinette V ChateauCONCLUSION: A transdisciplinary approach is essential for the holistic care of patients and their families with EB in the context of their resource limitations and […]
- Autor: Maelle BiotteauSpinal muscular atrophy (SMA) is a devastating early-onset genetic disease characterized by motor neuron degeneration. For several years, an early access program has facilitated the […]
- Autor: Loneke T Blackman CarrCONCLUSIONS: Future research may be impactful when multilevel approaches are undertaken that leverage equity-minded tools and can be scaled up to meet community-informed population needs […]
- Autor: Mikaila T LaneContext: Artificial intelligence (AI), particularly large language models (LLMs), offers the potential to augment clinical decision-making, including in palliative care pharmacy, where personalized treatment and […]
- Autor: Redwan NeshaCONCLUSION: Approximately one-fifth of the participants experienced prolonged in hospital stays. Therefore, clinical practitionars, hospital administrators and respective stackholders could significantly reduce the childrens length […]
- Autor: Na OuyangCONCLUSION: Parental preparation for EOL is often prompted by external factors, resulting in both internal and external actions. Parents identified specific factors that contributed to […]
- Autor: Annalisa SalernoCONCLUSION: Our findings support the feasibility and clinical relevance of a structured, interdisciplinary paediatric pain clinic for managing chronic and complex pain. While most paediatric […]
- Autor: Redwan NeshaCONCLUSION: Approximately one-fifth of the participants experienced prolonged in hospital stays. Therefore, clinical practitionars, hospital administrators and respective stackholders could significantly reduce the childrens length […]
- Autor: Camara Van BreemenCONCLUSIONS: The addition of family facilitators in the delivery of SICG-Peds workshops enhanced clinicians' learning. Moreover, bereaved parents reported that functioning as workshop facilitators was […]
- Autor: Hunter BechtoldINTRODUCTION: Residents frequently conduct code status discussions (CSDs) with patients, but many report not receiving formal training in this skill. While institutions have attempted to […]
- Autor: Stephanie M SmithAdolescent and young adult (AYA) cancer survivors represent a vulnerable population in cancer care and survivorship. AYA survivors are a heterogeneous group that includes people […]
- Autor: Kayoko MorioCONCLUSIONS: Pharmacists were actively engaged in pain management for children with cancer and their families. However, most reported difficulties, particularly in pain assessment and analgesic […]
- Autor: Zouheir Ibrahim BitarPneumatosis intestinalis (PI) is characterized by the presence of air within the walls of the small intestine, large intestine, and sometimes the gastric wall. The […]
- Autor: Nathaniel E HaywardINTRODUCTION: The negative effects of microaggressions on patient care, provider well-being, and medical education are well-documented. Critically evaluated programs addressing microaggressions remain largely absent in […]
- Autor: Silvia Aranda-GarcíaNo abstract
- Autor: Silvia Maria de Macedo BarbosaCONCLUSION: Despite exceptional accuracy, discrepant values should be considered with caution. This study should be replicated in a larger sample.
- Autor: Jacqueline PlazinaCONCLUSIONS: Babies being transferred for palliative care can be safely managed while receiving kangaroo cuddle, with the support of an experienced neonatal transfer team.
- Autor: Rosa VerhoevenCONCLUSION: Our findings suggest that Q-methodology can reveal meaningful patterns in how parents approach critical medical decisions. These insights could inform the development of a […]
- Autor: Francesca BenedettiPediatric palliative care (PPC) aims to enhance the quality of life of children with life-limiting conditions and their families through individualized, interdisciplinary support. Among this […]
- Autor: Katherine GuttmannCONCLUSIONS: Findings highlight the structural, cultural, and clinical changes needed to promote team-based care. Interprofessional communication skills trainings, training in trauma-informed care, primary intensivist models, […]
- Autor: Richard MattockCONCLUSIONS: High midwifery workload may alter care provision, potentially affecting mother and baby outcomes. Further robust research is needed to address limitations in current evidence.
- Autor: Hannah TredwayCONCLUSIONS: Patients with CCHD experience significant morbidity and mortality. Given the underutilization of subspecialty PC upon prenatal diagnosis of CCHD, implementation of routine PC consultation […]
- Autor: Hee Su ParkCONCLUSIONS: In an overwhelming majority of visits, PPC clinicians address psychological symptoms. The psychological domains within PPC practice are wide-ranging and likely incompletely recognized. Gaps […]
- Autor: Silvia Maria de Macedo BarbosaCONCLUSION: Despite exceptional accuracy, discrepant values should be considered with caution. This study should be replicated in a larger sample.
- Autor: Rosa VerhoevenCONCLUSION: Our findings suggest that Q-methodology can reveal meaningful patterns in how parents approach critical medical decisions. These insights could inform the development of a […]
- Autor: Francesca BenedettiPediatric palliative care (PPC) aims to enhance the quality of life of children with life-limiting conditions and their families through individualized, interdisciplinary support. Among this […]
- Autor: Richard MattockCONCLUSIONS: High midwifery workload may alter care provision, potentially affecting mother and baby outcomes. Further robust research is needed to address limitations in current evidence.
- Autor: Verónica IzquierdoCONCLUSIONS: CGM might be a useful point-of-care tool that provides valuable information that may help clinicians to make timely management decisions. The ability of CGM […]
- Autor: Rebecca M PearsonThis study aims to explore the influence of genetic similarity for neuroticism liability in mother's reported quality of relationship with her child and partner. Such […]
- Autor: Kirsty JaneINTRODUCTION: Neonatal intensive care is a traumatic environment for parents, infants and staff. Services need to collaborate with their users to develop acceptable and sustainable […]
- Autor: Mihaela Hizanu DumitracheBackground and Objectives: Estimating the need for palliative care for children is a crucial step in addressing the needs of children facing life-threatening conditions, while […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.