UP TO DATE
Nejnovější mezinárodní publikace o paliativní péči
- Autor: Aarti BhatiaCONCLUSIONS: Berzosertib (200 mg/m² iv weekly) was safe when combined with chemoradiation but did not improve complete response rate in LA-HNSCC.
- Autor: Nuša FaričCONCLUSIONS: This review summarises the types of adaptations made to oncology ePROMs during implementation. To date, there has been no agreed system to capture adaptations […]
- Autor: Junhua LiObjectiveThis study aimed to preliminarily evaluate the impacts of narrative-based palliative care on psychological stress, end-of-life acceptance, and quality of life in elderly terminally ill […]
- Autor: Zongrong LinCONCLUSION: This innovative mapping research highlights an increasing focus on the link between LC and HF, particularly concerning treatment-induced cardiotoxicity. Nonetheless, studies on their two-way […]
- Autor: Salaar AhmedCONCLUSIONS: DIPG care in LMICs is fundamentally compromised by significant barriers, including diagnostic delays and restricted access to biopsy, molecular profiling, and essential therapies. Combined […]
- Autor: Maria Cristina FerraraCONCLUSION: Delirium persisting from the preoperative to the postoperative phase was associated with poor functional status at discharge. Systematic assessment of delirium in both phases […]
- Autor: Michel TchanCONCLUSIONS: This initiative represents the first Australia-specific standard of care for NP-C. It is hoped that adoption of the framework will lead to improved experiences […]
- Autor: Caroline R MorehouseClinical research in persons with a terminal illness (PTI) can offer valuable scientific opportunities but raises the challenge of ensuring adequate protections for participants. Existing […]
- Autor: Ulrich KaiserNo abstract
- Autor: Teresa O'BrienPatients forget up to 80% of information conveyed during medical consultations. While clinicians may provide hand-written notes to patients during in-person appointments, such opportunities are […]
- Autor: Tomas Escobar GilCONCLUSIONS: Disparities in MBO management highlight gaps in equitable care, particularly gender and language preference. Non-English-speaking patients had a survival advantage, underscoring the importance of […]
- Autor: Natalie CotterellCONCLUSION: The findings demonstrate the numerous challenges LTCF staff experienced when delivering end-of-life care during the COVID-19 pandemic in terms of the practicalities of managing […]
- Autor: Nicole E CastonIntroductionCancer clinical trials do not always represent the real-world cancer population, as older adults and marginalized racial groups are often underrepresented. This study assessed patterns […]
- Autor: Johannes HeckSince its inception in North America in 1999, the Pokémon trading card game has become a global phenomenon, combining strategic gameplay with collectible culture. The […]
- Autor: Viktoria ZanderCONCLUSIONS: HWT shows potential as a complement to usual PC. Our findings point toward the importance of caution in choosing when to use HWT in […]
- Autor: László MangelDespite their undeniable effectiveness, the spectacular increase in the number of antitumor immunotherapies (IT) in recent years has resulted in a substantial organizational and financial […]
- Autor: Sowmya KasturiBackgroundOlder patients with severe cyanosis from unrepaired tetralogy of Fallot (TOF) face high perioperative morbidity despite technically straightforward surgical repair. Chronic hypoxemia leads to myocardial […]
- Autor: Salaar AhmedCONCLUSIONS: DIPG care in LMICs is fundamentally compromised by significant barriers, including diagnostic delays and restricted access to biopsy, molecular profiling, and essential therapies. Combined […]
- Autor: Michel TchanCONCLUSIONS: This initiative represents the first Australia-specific standard of care for NP-C. It is hoped that adoption of the framework will lead to improved experiences […]
- Autor: Jennifer M SnamanCONCLUSIONS: Refined PediQUEST-ResPOND was feasible, acceptable, and useful, supporting advancement to a pilot randomized trial.
- Autor: Shuyi ZhouDiffuse intrinsic pontine glioma (DIPG) is a highly aggressive and fatal pediatric brainstem tumor, characterized by rapid progression and extremely poor prognosis. Its infiltrative growth […]
- Autor: Wania ImtiazMalignant peripheral nerve sheath tumors (MPNSTs) are a rare and aggressive form of pediatric sarcomas, which are often accompanied by uncontrolled, intense pain, especially during […]
- Autor: Mark KosenkoCONCLUSIONS: Shorter rifamycin-containing regimens for pediatric TBI probably increase treatment completion and have similar safety outcomes, with no important difference in development of TB disease […]
- Autor: Oscar HorwathCerebral palsy (CP) is the most common cause of childhood-onset physical disability. It results from injury to the developing brain and is characterized by motor […]
- Autor: Sheng HeNo abstract
- Autor: Wania ImtiazMalignant peripheral nerve sheath tumors (MPNSTs) are a rare and aggressive form of pediatric sarcomas, which are often accompanied by uncontrolled, intense pain, especially during […]
- Autor: Oscar HorwathCerebral palsy (CP) is the most common cause of childhood-onset physical disability. It results from injury to the developing brain and is characterized by motor […]
- Autor: Smriti KhannaCongenital Diaphragmatic Hernia (CDH) is usually diagnosed prenatally. Despite advances, the prognosis remains poor for severe CDH in many healthcare settings, and many require transition […]
- Autor: Daphné Prieur-DrevonYoung doctors confronted with death confirmation and death notification experience practical and emotional difficulties. The medical curriculum does not provide any specific training on these […]
- Autor: Katherine E MacDuffieCONCLUSIONS: We conclude with recommendations for policy amendments that could improve the experience of potential participants asked to donate HFT for biomedical research.
- Autor: Brittany L GreeneGenomics-and genomic testing in particular-has transformed oncology, facilitating both targeted therapies and personalized care. In pediatric oncology, unique clinical and ethical considerations arise. Compared with […]
- Autor: Camila Padula DominguesCONCLUSIONS: The results highlight the complexity of the caregiving experience in chronic contexts, with an emphasis on the emotional and spiritual dimensions of the suffering […]
- Association of red blood cell transfusions with periventricular leukomalacia in very preterm infantsAutor: Thomas BruneCONCLUSION: RBC transfusions were independently associated with PVL in preterm infants. As lowering transfusion thresholds has not been associated with improved neurological outcomes, consideration of […]
- Autor: Smriti KhannaCongenital Diaphragmatic Hernia (CDH) is usually diagnosed prenatally. Despite advances, the prognosis remains poor for severe CDH in many healthcare settings, and many require transition […]
- Autor: Yang ZhaoBackgroundPediatric palliative care in Mainland China is still developing. Biological, psychological, and social factors may change during the course of illness and after the child's […]
- Autor: Namrata MasteyCONCLUSIONS: Participants having an abortion for life-limiting fetal conditions have rarely heard of perinatal palliative care despite expressing similar goals of care.
- Autor: Sherri HuangEarlier analyses evaluating patterns of gut microbiota in individuals from different geographies and age groups are heterogeneous in methodology, precluding broader conclusions about the relationship […]
- Autor: Semra WorrallCONCLUSIONS: Variable timing of assessment and tool(s) used to measure postpartum anxiety, alongside limited consideration of categories of gestational age (i.e., extremely, very, moderate-to-late preterm) […]
- Autor: Sheron A WagnerOtopalatodigital syndrome type 2 (OPD2) is a rare, typically lethal X-linked congenital disorder associated with craniofacial, skeletal, and visceral malformations. Because of its rarity, each […]
- Autor: Ami BabaCONCLUSIONS AND RELEVANCE: Widespread implementation and uptake of CONSORT-C 2026 should optimize the usability of trial results for these populations, improve the reproducibility of trial […]
- Autor: Smriti KhannaCongenital Diaphragmatic Hernia (CDH) is usually diagnosed prenatally. Despite advances, the prognosis remains poor for severe CDH in many healthcare settings, and many require transition […]
- Autor: Sherri HuangEarlier analyses evaluating patterns of gut microbiota in individuals from different geographies and age groups are heterogeneous in methodology, precluding broader conclusions about the relationship […]
- Autor: Semra WorrallCONCLUSIONS: Variable timing of assessment and tool(s) used to measure postpartum anxiety, alongside limited consideration of categories of gestational age (i.e., extremely, very, moderate-to-late preterm) […]
- Autor: Chee Mun ChanSevere combined immunodeficiency (SCID) is a life-threatening inborn error of immunity (IEI) that is potentially curable when diagnosed early but is associated with high morbidity […]
- Autor: Clara PerenyiCONCLUSIONS: In this tertiary NICU, most deaths were anticipated and occurred following structured WWLST processes. Unanticipated deaths primarily reflected rapid clinical deterioration and were associated […]
- Autor: Stephanie A KraftInteractions with families are essential to successful recruitment conversations that promote informed decision-making about clinical research enrollment. However, there is little evidence about how to […]
- Autor: Heather J BaldwinCONCLUSION: This new comprehensive national data linkage resource represents a valuable asset that will facilitate research to identify the risk of late effects and effective […]
- Autor: Jacob KelnerCONCLUSION: Our observational study suggests that starting with LDC may be as effective as HDC in treating pain, agitation, and opioid withdrawal in infants admitted […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.