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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Rose Wai-Yee FokCONCLUSION: Risk stratification of CRC using a RPT showed increased screening uptake. Future research is needed to understand which components of this complex intervention worked […]
- Autor: Asteway M HaileCongenital syngnathia, the rare fusion of the maxilla and mandible, poses significant feeding and respiratory challenges. Its management is complicated by rarity and potential syndromic […]
- Autor: Kenji NumataCONCLUSIONS: This study highlights the challenges EPs in Japan face when making urgent decisions with limited time and information while building trust with patients and […]
- Autor: Shi-Mei HouCONCLUSION: Sex-specific myosteatosis thresholds (males: SMD ≤32.46 HU; females: ≤34.58 HU) derived from L3-CT independently predicted all-cause and cardiac mortality in initial-dialysis patients. The myosteatosis-based […]
- Autor: Veramar R Jarquín-RiosCreutzfeldt-Jakob Disease (CJD) is a rare, rapidly progressive and fatal prion encephalopathy characterized by cognitive deterioration, motor dysfunction and myoclonus. The present study describes the […]
- Autor: Monica AgostaThe setting in which patients face the end of life (EOL) is shaped by complex, individualized needs beyond physical care. Mr. X, a man in […]
- Autor: Gemmae M FixCONCLUSIONS: In situations of uncertainty, where robust clinical guidance is limited, Veterans want Veteran-centered, transparent, respectful communication that attends to their socially and historically rooted […]
- Autor: Lian TrapmanCONCLUSIONS/DISCUSSION: This study underscores the importance of behavioral and organizational change in palliative care to optimize conversations exploring values, preferences, and needs for end-of-life care […]
- Autor: Emily Louise BoucherBACKGROUND: Older people account for a growing proportion of unplanned hospital admissions and many have complex conditions. However, there are few data on cognitive morbidity […]
- Autor: Jee Yan OngCONCLUSION: This case demonstrates the potential of GKR as a noninvasive and effective modality for the simultaneous treatment of choroidal and intracranial metastases. In palliative […]
- Autor: Sultan M AlshahraniCONCLUSION: Community pharmacists in the Aseer region show strong willingness but limited preparedness for palliative care services. Addressing training deficiencies through structured modules and continuing […]
- Autor: Hsien-Liang HuangCONCLUSIONS AND RELEVANCE: In this cohort study of patients with advanced oral cavity cancer, implementation of the SOP model was associated with greater utilization of […]
- Autor: C GageCONCLUSION: EMS are frequently used for access to palliative care at any time of the day, week or year, particularly in peri-urban areas. EMS may […]
- Autor: Arienne PatanoCONCLUSIONS: Study outcomes will inform the role of SDOHs, particularly health literacy, for the development of interventions to emotionally support rural FCGs.
- Autor: Marius DryschRemote ischemic preconditioning (RIPC) is a non-invasive strategy to protect tissues from ischemia-reperfusion injury (IRI), yet its systemic molecular mediators remain incompletely understood. Extracellular vesicles […]
- Autor: David GeddesCONCLUSIONS: The majority of respondents were in support of assisted dying, but a smaller proportion felt the current proposed bill should be implemented, due to […]
- Autor: Asteway M HaileCongenital syngnathia, the rare fusion of the maxilla and mandible, poses significant feeding and respiratory challenges. Its management is complicated by rarity and potential syndromic […]
- Autor: Maria AyoubBACKGROUND AND PURPOSE: The psychosocial needs of migrant families affected by a child's severe -illness are extensive. However, few family-centred interventions have been evaluated and […]
- Autor: Lindsay SullivanCONCLUSIONS: This study provides a deeper understanding of the negative effect chronic pain can have on adolescents and family life. Our findings call for interventions […]
- Autor: Arun GhoshalIndividuals living with HIV/AIDS (PLWHA) face significant physical, psychological and social challenges, even with the progress made in antiretroviral therapy (ART). The integration of palliative […]
- Autor: Mónica Santos FerreiraCONCLUSIONS: This review underlines the complexity, variability, and importance of spirituality while living within a complex, life-threatening or life-limiting paediatric context. However, there is still […]
- Autor: Holly EllardCONCLUSION: This study illustrates some of the issues that can arise from unexpected and uncertain information when returning results from broad-scope genomic testing for paediatric […]
- Autor: Naoko MoriPediatric brain tumors are the leading cause of cancer-related deaths in children, and cause unique suffering by degrading the neurological functions essential to a child's […]
- Autor: Philip BlumenfeldCraniospinal irradiation (CSI) is a technically demanding treatment in pediatric oncology, especially for young children, who often require daily anesthesia. Although proton therapy offers dosimetric […]
- Autor: Maria AyoubBACKGROUND AND PURPOSE: The psychosocial needs of migrant families affected by a child's severe -illness are extensive. However, few family-centred interventions have been evaluated and […]
- Autor: Lindsay SullivanCONCLUSIONS: This study provides a deeper understanding of the negative effect chronic pain can have on adolescents and family life. Our findings call for interventions […]
- Autor: Philip BlumenfeldCraniospinal irradiation (CSI) is a technically demanding treatment in pediatric oncology, especially for young children, who often require daily anesthesia. Although proton therapy offers dosimetric […]
- Autor: Simen Alexander SteindalCONCLUSIONS: Children with cancer and their families are the most frequently reported users of health technology for communicating with HCPs in home-based PPC. However, research […]
- Autor: Jaime LindseyCONCLUSIONS: That mediation can be used in paediatric best interests disputes with a religious dimension and that mediators should develop further ways of delineating which […]
- Autor: Holly E EvansCONCLUSION: Participants with ovarian cancer viewed prognostic testing positively. However, successful implementation will require a patient-centred approach that accommodates diverse preferences around how the test […]
- Autor: Farzaneh TaghaeeCONCLUSION: As evidenced, healthcare policymakers and clinical instructors should develop and implement appropriate CB training programs for nursing students to promote the quality of patient […]
- Autor: Mahmasoni MasdarMoral distress is a prevalent and disruptive force in palliative care practice, undermining clinicians' capacity to uphold ethical integrity amid systemic and situational constraints. As […]
- Autor: Asteway M HaileCongenital syngnathia, the rare fusion of the maxilla and mandible, poses significant feeding and respiratory challenges. Its management is complicated by rarity and potential syndromic […]
- Autor: Linde GoossensCONCLUSIONS: Both parents and healthcare providers pointed out the need for a multidisciplinary team to coordinate PPC across time and disciplines. Parents expressed more dissatisfaction […]
- Autor: Jaime LindseyCONCLUSIONS: That mediation can be used in paediatric best interests disputes with a religious dimension and that mediators should develop further ways of delineating which […]
- Autor: Danielle SchoenakerCONCLUSION: Based on observational evidence, increasing access to preconception care could be beneficial to optimize maternal nutrition and weight-related outcomes, and addressing obesity and GWG […]
- Autor: Y Y TanCarnitine palmitoyltransferase II (CPT II) deficiency is a rare inherited disorder of mitochondrial oxidation of long-chain fatty acids (LCFA). Carnitine is the sole carrier of […]
- Autor: Taryn L LuitinghCONCLUSION: Personalised provisions of love and care were dignities parents could warmly reflect back on during their bereavement. Importantly, tailoring memory making practices to the […]
- Autor: Lihua WenHigh-frequency oscillation ventilation (HFOV) is a commonly used therapeutic modality in the pediatric intensive care unit, and this study aims to investigate the clinical characteristics […]
- Autor: Elizabeth G Broden ArcipreteCONCLUSIONS: Most included studies targeted clinician outcomes through education. Designing, testing, and implementing interventions focused on family outcomes is a critical next step.
- Autor: Linde GoossensCONCLUSIONS: Both parents and healthcare providers pointed out the need for a multidisciplinary team to coordinate PPC across time and disciplines. Parents expressed more dissatisfaction […]
- Autor: Jaime LindseyCONCLUSIONS: That mediation can be used in paediatric best interests disputes with a religious dimension and that mediators should develop further ways of delineating which […]
- Autor: Y Y TanCarnitine palmitoyltransferase II (CPT II) deficiency is a rare inherited disorder of mitochondrial oxidation of long-chain fatty acids (LCFA). Carnitine is the sole carrier of […]
- Autor: Lihua WenHigh-frequency oscillation ventilation (HFOV) is a commonly used therapeutic modality in the pediatric intensive care unit, and this study aims to investigate the clinical characteristics […]
- Autor: Elizabeth G Broden ArcipreteCONCLUSIONS: Most included studies targeted clinician outcomes through education. Designing, testing, and implementing interventions focused on family outcomes is a critical next step.
- Autor: Shirley Du YanAlthough India's health outcomes have improved, progress can still be made to reduce the health burden from tuberculosis, noncommunicable diseases, and maternal and neonatal health. […]
- Autor: Vinami YulianCONCLUSIONS: The Desa SIAGA programme could bring benefits to improve MNH outcomes through the active participation of the community, but this will remail limited unless […]
- Autor: Katarzyna UrbanskaCONCLUSIONS: These findings highlight the need for structured education focused not only on clinical skills but also on emotional preparedness. Psychological support systems should be […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.