UP TO DATE
Nejnovější mezinárodní publikace o paliativní péči
- Autor: Masanori MoriCONCLUSIONS: UB is prevalent and associated with psychological distress among bereaved families of patients with cancer. Interventions promoting preparedness and supporting patients and families to […]
- Autor: Sumayyah Omar BintalibCONCLUSION: In advanced cancer, particularly in patients with cognitive impairment and delirium, careful assessment of pain mechanisms, caregiver engagement, and proportionate investigations are essential to […]
- Autor: Oliver MaynardInfections can significantly impair quality of life in patients with life-limiting disease, yet antibiotics are infrequently used for symptom control in palliative care due to […]
- Autor: Ching-Mei ChangBackgroundEnd-of-life (EOL) nursing education faces a critical knowledge-practice gap and systemic moral distress due to institutional and procedural ambiguities surrounding Do Not Resuscitate (DNR) orders […]
- Autor: Rachel A HadlerCONCLUSIONS: SafeNET's performance was reproducible in an external health system, supporting its portability. However, local models trained on system-specific electronic health record patterns achieved markedly […]
- Autor: Joanna PattenCONCLUSIONS: The PNW questionnaire is a promising novel screening measure for needle fear. Research can build on this foundational reliability and validity data to test […]
- Autor: Na OuyangCONCLUSION: Clinicians may best support parents by providing explicit, action-oriented guidance, compassionate and preference-concordant communication, trusted relationships, and supportive resources.
- Autor: Dorothy Ekua AdjabuCONCLUSION: The majority of HCPs reported referring children/adolescents for physiotherapy because of physical limitations. Most referred cases utilised physiotherapy services; however, reasons for non-utilisation included […]
- Autor: Giulia BertinoCONCLUSIONS: The combined treatment of ECT and RT is feasible, safe, and effective in elderly patients. The findings suggest that ECT may have particular value […]
- Autor: Kerstin KremeikeBACKGROUND: In 2020, the German Federal Constitutional Court declared the criminal prohibition of assisted suicide as unconstitutional, thereby abolishing previous restrictions. Since then, requests and […]
- Autor: Hannah Miller WhiteheadCONCLUSION: Implementation of a multicomponent primary palliative care model coincided with improvements in care patterns over time. However, the study design did not allow attribution […]
- Autor: None PushpaCONCLUSION: Oral melatonin improved sleep quality and reduced fatigue in patients with head and neck cancer and was associated with better caregiver sleep perception.
- Autor: Linda MayerNo abstract
- Autor: Hui G ChengCONCLUSION: Cancer diagnosis is associated with profound, multidimensional disruptions, many of which persist for years. These findings underscore the need for comprehensive survivorship care, including […]
- Autor: Vincent SoINTRODUCTION: Sexual and gender minority (SGM) individuals remain underrepresented across several medical specialties and leadership positions. Training environments in medical school and residency may shape […]
- Autor: Seon-Hye WonCONCLUSION: All female patients and survivors of breast cancer had preferences and good memories for clothing color. In most participants, these colors supported social interaction, […]
- Autor: Meaghann S WeaverINTRODUCTION: Precision medicine has become central to pediatric oncology, with germline genomic sequencing commonly integrated into routine care. Families must interpret complex genomic findings during […]
- Autor: Joanna PattenCONCLUSIONS: The PNW questionnaire is a promising novel screening measure for needle fear. Research can build on this foundational reliability and validity data to test […]
- Autor: Na OuyangCONCLUSION: Clinicians may best support parents by providing explicit, action-oriented guidance, compassionate and preference-concordant communication, trusted relationships, and supportive resources.
- Autor: Dorothy Ekua AdjabuCONCLUSION: The majority of HCPs reported referring children/adolescents for physiotherapy because of physical limitations. Most referred cases utilised physiotherapy services; however, reasons for non-utilisation included […]
- Autor: Kanako TakedaCONCLUSIONS: This review suggested that communication and relationships in pediatric end-of-life decision making were shaped by cultural and structural contexts, as reflected in the United […]
- Autor: Abdullah AlmehandiCONCLUSION: The findings suggest that, although off-pump BDG procedure is associated with shorter operative and recovery AU: Please provide the accepted date. times than the […]
- Autor: Nadine LusneyDyspnea is a common and distressing symptom in children living with serious illnesses, particularly near the end of life, and requires thoughtful, family-centered assessment and […]
- Autor: Clare GardinerCONCLUSIONS: This review highlights research priorities for family caregiving in palliative care. Significant gaps remain in our understanding of how best to support carers, and […]
- Autor: Jeonghee AhnCONCLUSION: The art therapy workbook was confirmed as a useful intervention for reducing anxiety and stress in pediatric patients with cancer receiving palliative care. As […]
- Analysis of aspartate aminotransferase-to-platelet ratio index and liver fibrosis in biliary atresiaAutor: Elizabeth BritsCONCLUSION: Aminotransferase-to-platelet ratio index should not replace established clinical decision-making but may provide useful adjunctive information alongside clinical, biochemical and histological assessment. These findings provide […]
- Autor: Mark P PopenhagenSevere junctional epidermolysis bullosa (JEB) is a rare, incurable, autosomal recessive blistering disorder with a uniformly poor prognosis. We present the case of a female […]
- Autor: Nataliia ZhovtaEpidermolysis bullosa simplex-severe (EBS-severe) caused by KRT5 p.Glu477Lys is a rare and particularly severe subtype associated with high neonatal morbidity and mortality. We report an […]
- Autor: David AmoatengBACKGROUND: Artificial intelligence (AI) is thought by many to likely underpin the next revolution in clinical medicine. The rapidly evolving terminology in AI – including […]
- Autor: Mariuska Forteza SáezCONCLUSIONS: Cuba has favorable structural conditions for implementing an integrated, high-quality PPC model for children with cancer. The implementation of the National Pediatric Palliative Care […]
- Autor: Yixuan WangCONCLUSIONS: School-aged children actively construct meaning throughout the cancer trajectory. Integrating interdisciplinary support for meaning making that is child-centered and developmentally and culturally responsive into […]
- Autor: Michelle J BartlettBackground Recruiting families for neonatal clinical trials is challenging due to narrow enrollment windows, high clinical acuity, and parental stress, which contributes to concerns regarding […]
- Autor: Na ZhangCONCLUSION: The FCC-NPC developed in this study has good science and practicality, and may provide a reference for NPC clinical practice.
- Autor: Mark P PopenhagenSevere junctional epidermolysis bullosa (JEB) is a rare, incurable, autosomal recessive blistering disorder with a uniformly poor prognosis. We present the case of a female […]
- Autor: Nataliia ZhovtaEpidermolysis bullosa simplex-severe (EBS-severe) caused by KRT5 p.Glu477Lys is a rare and particularly severe subtype associated with high neonatal morbidity and mortality. We report an […]
- Autor: Kirsty JaneMany seriously ill infants admitted to neonatal intensive care units (NICU) have an uncertain future. The neonatal experience can be overwhelming and traumatic for parents […]
- Autor: Michelle J BartlettBackground Recruiting families for neonatal clinical trials is challenging due to narrow enrollment windows, high clinical acuity, and parental stress, which contributes to concerns regarding […]
- Autor: Jessie RoweCONCLUSIONS: Compassionate transport is generally supported by clinicians as a meaningful end-of-life care option for critically ill neonates and children, despite practical, organisational, and ethical […]
- Autor: Maria Beatriz Mariano-MenezesCONCLUSIONS: Within Perinatal/Neonatal Palliative Care, advance care planning organizes communication/decisions while supporting infant comfort with standardized, shared plans. Practice should prioritize structured conversations, embedded documentation, […]
- Autor: Maha BamehrezCONCLUSIONS: BPD affected one-fifth of preterm infants who survived to PMA of 36 weeks, with evidence of increasing burden over time. Our findings support coordinated […]
- Autor: Mark P PopenhagenSevere junctional epidermolysis bullosa (JEB) is a rare, incurable, autosomal recessive blistering disorder with a uniformly poor prognosis. We present the case of a female […]
- Autor: Nataliia ZhovtaEpidermolysis bullosa simplex-severe (EBS-severe) caused by KRT5 p.Glu477Lys is a rare and particularly severe subtype associated with high neonatal morbidity and mortality. We report an […]
- Autor: Kirsty JaneMany seriously ill infants admitted to neonatal intensive care units (NICU) have an uncertain future. The neonatal experience can be overwhelming and traumatic for parents […]
- Autor: Michelle J BartlettBackground Recruiting families for neonatal clinical trials is challenging due to narrow enrollment windows, high clinical acuity, and parental stress, which contributes to concerns regarding […]
- Autor: Maha BamehrezCONCLUSIONS: BPD affected one-fifth of preterm infants who survived to PMA of 36 weeks, with evidence of increasing burden over time. Our findings support coordinated […]
- Autor: Carolyn MazariegoInformed consent is fundamental to Australian newborn bloodspot screening (NBS), but emerging genomic screening technologies pose new challenges to clinical care and research. Optimizing consent […]
- Autor: Mehmet CanCONCLUSIONS: This study shows significant differences between IRPIs and MDRPIs in terms of localization, initial wound size, wound stage, healing response, and treatment duration. The […]
- Autor: Halle C PetrieCONCLUSION: Driven by fetal indications for delivery, patients with a known LLFD underwent CD in 42.5% of pregnancies, with substantial variation across diagnoses. It is […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.
Odborné stanovisko Sekce dětské paliativní medicíny České pediatrické společnosti ČLS JEP k problematice paliativní sedace u dětských pacientů v závěru života.