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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Genevieve CrottyIntroduction Advance Care Directives and Resuscitation Plans support patient-centred care for high-risk inpatients, particularly when clinical deterioration or end-of-life decision-making is anticipated. This audit aimed […]
- Autor: Emmanuel G VillalpandoPatients with cancer often experience intertwined symptom burden and functional decline that contribute to falls, unsafe transfers, uncontrolled symptoms, caregiver strain, and crisis-driven care. Physical […]
- Autor: Stefano FuscoCONCLUSIONS: The TDS may serve as a complementary, imaging-based tool within a multimodal diagnostic framework for IPMN. Its potential value lies in supporting clinical decision-making […]
- Autor: Tara SampalliThe Canadian cancer care landscape faces rising cancer incidence, persistent inequities, and increasing system pressures. Led by the Canadian Association of Provincial Cancer Agencies (CAPCA), […]
- Autor: Shinya KajiuraFacility-level availability of Japanese Society of Medical Oncology (JSMO) specialists may influence care processes, but national cancer genomic medicine data rarely capture patient-level specialist involvement. […]
- Autor: Meng-Yuan LiPurpose: Breast cancer has been recognised as a chronic condition, with survivors experiencing long-term physical and psychosocial effects following treatment. Supporting breast cancer survivors to […]
- Autor: Daniela Valle Almeida FigueredoObjective: To review the literature on palliative care protocols and models of care for pregnant women and their fetuses with life-limiting conditions. Methods: A narrative […]
- Autor: Evans OhemengWhile several dosing protocols for iodinated contrast media (ICM) exist, a consensus strategy for optimising the physical imaging signal in abdominal CT is lacking. This […]
- Autor: Michael SanataniCONCLUSIONS: Patients with advanced colon or pancreatic cancer reported facing numerous adaptive challenges, confirming the applicability of the conceptual framework to the patient experience. The […]
- Autor: Komal KashyapNo abstract
- Autor: Maria KhanCONCLUSIONS: CAA and SCAD demonstrated distinct demographic and clinical profiles in this UAE cohort. The predominance of pregnancy-associated SCAD supports the need for heightened cardiovascular […]
- Autor: Olfi LelyaCONCLUSIONS: Both ductal stenting and m-BTT shunt demonstrated comparable short-term efficacy in palliating cyanosis among infants weighing
- Autor: Jude K A des BordesCONCLUSION: An individualized mentoring approach to QI education was feasible and effective, enhancing resident knowledge and readiness to design targeted improvement initiatives.
- Autor: Tamriko BuliaCONCLUSION: Despite early legislative advances, Georgia's palliative care system remains fragmented and inadequately integrated into primary health care. Strengthening governance, financing, education, and monitoring in […]
- Autor: Haijun SunBackground: The melanoma-associated antigen-A1 (MAGE-A1) demonstrates tumor-restricted expression patterns in diverse malignancies, positioning it as an attractive therapeutic target. This investigation aimed to engineer and […]
- Autor: Nuno M NunesThe humanization of patient care depends not only on the attitudes and behaviors of individual professionals but also on the organizational conditions in which healthcare […]
- Autor: Cristina MartínezCONCLUSIONS: Knowledge, attitudes, behaviors, and organizational factors improved significantly among health professions students in both countries. These findings suggest that this online training program may […]
- Autor: Ashley AllenSickle cell disease (SCD) is a congenital, life-limiting illness that affects millions worldwide. It carries a high symptom burden and decreased quality of life. Although […]
- Autor: Zishen WangChinese parents' death attitudes influence how they guide children in understanding death, coping with loss and managing grief. This study identified Chinese parents' death attitude […]
- Autor: Clare GhowsCONCLUSION: Almost half of parents reported that their children experienced poor HRQoL during and after treatment. Procedural anxiety and cognitive dysfunction were key contributors to […]
- Autor: Conrad KrawiecIMPORTANCE: Palliative care consultation is an essential component of comprehensive care for patients with cancer during critical illness, as it can improve symptom management and […]
- Autor: Meaghann S WeaverChildren with sickle cell disease (SCD) experience school-based barriers that affect well-being and long-term outcomes. This article reframes school as a partner and core site […]
- Autor: Markus SchwerzmannCONCLUSIONS: This international consensus identified 18 major trigger criteria to support timely SIC initiation in adults with CHD. These criteria span diverse clinical scenarios and […]
- Autor: Ebere J AchiCONCLUSION: In general, physicians in this study supported the ethical inclusion of terminally ill patients in research provided rigorous safeguards are applied. They operationalize autonomy, […]
- Autor: Conrad KrawiecIMPORTANCE: Palliative care consultation is an essential component of comprehensive care for patients with cancer during critical illness, as it can improve symptom management and […]
- Autor: Markus SchwerzmannCONCLUSIONS: This international consensus identified 18 major trigger criteria to support timely SIC initiation in adults with CHD. These criteria span diverse clinical scenarios and […]
- Autor: Ebere J AchiCONCLUSION: In general, physicians in this study supported the ethical inclusion of terminally ill patients in research provided rigorous safeguards are applied. They operationalize autonomy, […]
- Autor: Denis EhrlBackground and Importance: Congenital encephalocele refers to the protrusion of CNS tissue through a skull defect. As a rare neural tube malformation, clinical evidence is […]
- Autor: Lindonne TelesfordEach year, millions of people around the world experience serious health-related suffering from life-threatening and life-limiting illnesses and require palliative care. Palliative care is a […]
- Autor: Kewei Sylvia ShiNo abstract
- Autor: Samantha MekhuriCONCLUSIONS: Our 12-week digital peer support program had no effect on caregiver mastery or other caregiving or psychological outcomes among family caregivers of individuals with […]
- Autor: Paul Y TakahashiCONCLUSIONS: Compared with the period before the COVID-19 pandemic, RSV-ARI incidence was lower in both 2021-2022 and 2022-2023 periods. In 2022-2023, the incidence increased 2.7-fold […]
- Autor: Sydney CampbellPublic policy in Canada develops through deliberative democracy and, increasingly, public engagement. Children and youth ('young people') remain largely excluded from these processes however; this […]
- Autor: Betty CohnCONCLUSIONS: This study translates a conceptual framework of perceived utility of GS into a practical codebook for qualitative research. Our intent is to facilitate conceptually-grounded, […]
- Autor: Sinead BradyCONCLUSION: Differing from other institutions, the lack of trend toward more intervention in patients with T13 and T18 at CUIMC, may be due to the […]
- Autor: Hassan Al-ShehriThere is limited literature on the perceptions and practices of nurses in Saudi Arabia related to neonatal palliative care (NPC). This study aimed to assess […]
- Autor: Chinyere O'ConnorCONCLUSIONS: This curriculum offers a promising framework for preparing pediatric residents to navigate care that might be morally distressing yet ethically permissible. Gaps persisted in […]
- Autor: Melissa RiegelCONCLUSIONS: ICU family-focused end-of-life and bereavement interventions can provide meaningful support, but effectiveness is difficult to determine due to inconsistent implementation and methodological variation. Findings […]
- Autor: Matthew LinCONCLUSION: PPC is associated with longer LOS and more subspecialists throughout admission but lower medical intensity at EOL. Different measures of care utilization may reflect […]
- Autor: Yonghyuk JeonCONCLUSIONS: EOL decision timing and care patterns differed between oncology and non-oncology patients, suggesting disease trajectory may influence EOL decision-making in PICUs.
- Autor: Sydney CampbellPublic policy in Canada develops through deliberative democracy and, increasingly, public engagement. Children and youth ('young people') remain largely excluded from these processes however; this […]
- Autor: Hassan Al-ShehriThere is limited literature on the perceptions and practices of nurses in Saudi Arabia related to neonatal palliative care (NPC). This study aimed to assess […]
- Autor: Chinyere O'ConnorCONCLUSIONS: This curriculum offers a promising framework for preparing pediatric residents to navigate care that might be morally distressing yet ethically permissible. Gaps persisted in […]
- Autor: Yonghyuk JeonCONCLUSIONS: EOL decision timing and care patterns differed between oncology and non-oncology patients, suggesting disease trajectory may influence EOL decision-making in PICUs.
- Autor: Ya Haddy SallahThe purpose of this study was to evaluate current practices in the management of epithelial ovarian cancer (OC) in sub-Saharan Africa (SSA). A 27-question survey […]
- Autor: Jeanette FinderupCONCLUSION: The limited evidence on nurse-led shared decision making spans diverse clinical contexts and uses various interventions. Future research of nurse-led shared decision making interventions […]
- Autor: Giulia ManziINTRODUCTION: The numbers of children and young people living with chronic conditions are rising, with many experiencing significant functional limitations and complex healthcare needs. As […]
- Autor: Kelly CoxCONCLUSIONS: Half of fetuses with truncus arteriosus will have an associated genetic abnormality or extracardiac anomaly. Truncal valve stenosis and ventricular dysfunction, as well as […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.
Odborné stanovisko Sekce dětské paliativní medicíny České pediatrické společnosti ČLS JEP k problematice paliativní sedace u dětských pacientů v závěru života.