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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Adi KartoloPurpose: Timeliness of systemic therapy initiation for advanced lung cancer is highly dependent on pathology and molecular pathology laboratory services. Here, we aimed to prospectively […]
- Autor: V D ParshinCONCLUSION: This method appears promising but requires further research to assess complication risks and optimize implantation techniques.
- Autor: Anna N WilkinsonCervical cancer is a largely preventable disease, with over 90% of cases caused by persistent infection with human papillomavirus (HPV). Despite the availability of HPV […]
- Autor: Carolina Muñoz OlivarBackground: Integrating palliative care (PC) into primary health care (PHC) is essential for achieving Universal Health Coverage and reducing avoidable suffering. Despite global progress in […]
- Autor: Abdulelah AlanaziBackground/Objectives: Palliative care education is a core component of undergraduate nursing preparation; however, many nursing students report limited exposure and confidence in providing end-of-life care. […]
- Autor: Ana ĆurkovićBackground: Palliative care addresses not only physical symptoms but also the social, psychological, and spiritual needs of patients. Nurses play a key role in identifying […]
- Autor: Stephen A AshfordImprovement in passive function (i.e., ease of caring for a limb) is a common goal for treatment of spasticity in the arm with botulinum toxin. […]
- Autor: Juan Pablo Román-CalderónFibromyalgia is a widespread chronic pain condition affecting quality of life. Emotional distress and loneliness are factors commonly related to pain and suffering. However, no […]
- Autor: Aima MolatiCONCLUSION: This scoping review will provide a comprehensive synthesis of CYP involvement as PPI contributors in PPC research. It will illuminate effective engagement practices, highlight […]
- Autor: Rashmi RamachandranCONCLUSION: The design-based approach enabled the systematic development of the ultrasound-guided diagnostics course, ensuring alignment between instructional strategies and learner needs. This study highlights the […]
- Autor: Fiorentina GuidaNo abstract
- Autor: Chista R IraniCONCLUSION: This case highlights the challenges of treating cervical cancer in an immunosuppressed renal-transplant recipient and emphasizes the importance of individualized screening and multidisciplinary care. […]
- Autor: Aaron JonesCONCLUSIONS: Home visits decreased sharply after incentive reform and the COVID-19 pandemic, with no evidence of recovery except among palliative visits. These findings suggest a […]
- Autor: Matilde Alida Arendt EriksenCONCLUSION: The structured ABPC model facilitated adequate symptom management and was widely accepted among general practitioners and municipal nurses, demonstrating promising potential for end-of-life care […]
- Autor: Kevin H HuynhCONCLUSIONS: Caregivers of children with more complex SHCN report relying on a wide network of emotional support sources. Enhanced care coordination models should include screening […]
- Autor: Corina MărgineanNo abstract
- Autor: Sarah LongWhile whole exome sequencing (WES) in pregnancy for fetal structural anomalies (FSA) has become increasingly feasible in Australia, parents' experiences of undergoing WES for FSA […]
- Autor: Sawsan AbuhammadCONCLUSIONS: Sustaining neonatal gains will require nurse-led leadership in equity, developmental partnership, ethical palliative practice, and judicious technology integration under mounting climate pressures.
- Autor: Bruno GagnonCONCLUSIONS: The study demonstrated that standardization in the practice of continuous palliative sedation can be achieved across diverse clinical settings.
- Autor: Aima MolatiCONCLUSION: This scoping review will provide a comprehensive synthesis of CYP involvement as PPI contributors in PPC research. It will illuminate effective engagement practices, highlight […]
- Autor: Oz MordechaiPediatric patients with progressive and refractory solid tumors face a challenging prognosis. Despite advancements in treatments like immunotherapy and targeted therapy, survival rates remain low […]
- Autor: Meaghann S WeaverThis month's Ethics Rounds presents a case of an adolescent and her parent who object to the presence of a transgender adolescent in an established […]
- Autor: Gamze AkayCONCLUSIONS: These findings support the use of age-appropriate, non-pharmacological methods to manage procedural pain in paediatric palliative care settings.
- Autor: Kevin H HuynhCONCLUSIONS: Caregivers of children with more complex SHCN report relying on a wide network of emotional support sources. Enhanced care coordination models should include screening […]
- Autor: Aima MolatiCONCLUSION: This scoping review will provide a comprehensive synthesis of CYP involvement as PPI contributors in PPC research. It will illuminate effective engagement practices, highlight […]
- Autor: Fiorentina GuidaNo abstract
- Autor: Kevin H HuynhCONCLUSIONS: Caregivers of children with more complex SHCN report relying on a wide network of emotional support sources. Enhanced care coordination models should include screening […]
- Autor: Qingmei JuCONCLUSION: Clinical practice poses real challenges to nursing students, resulting in a decline in positive attitudes towards death and PC competence. It is necessary to […]
- Autor: Ulrika SkogelandCONCLUSION: This study highlights the emotional burden and caregiving responsibilities shouldered by family members of individuals with CF who have undergone lung transplantation. The findings […]
- Autor: Dr Amit Kumar PandeyCONCLUSION: In a selected subgroup of anatomically suited patients with CCHD and PS, stepwise dilatation of the pulmonary valve resulted in improved oxygenation and symptomatic […]
- Autor: Ibrahim SalihSirenomelia is a rare, lethal congenital anomaly characterized by caudal regression and lower limb fusion. The etiopathogenesis is multifactorial, with maternal glycemic dysregulation established as […]
- Autor: Lucy PlumbCONCLUSION: Children receiving conservative kidney care account for approximately one-tenth of all incident paediatric kidney failure in the UK. While families receive specialist and palliative […]
- Autor: Sawsan AbuhammadCONCLUSIONS: Sustaining neonatal gains will require nurse-led leadership in equity, developmental partnership, ethical palliative practice, and judicious technology integration under mounting climate pressures.
- Autor: Ibrahim SalihSirenomelia is a rare, lethal congenital anomaly characterized by caudal regression and lower limb fusion. The etiopathogenesis is multifactorial, with maternal glycemic dysregulation established as […]
- Autor: Martha Irene KartasuryaCONCLUSION: Vitamin D supplementation in pregnancy, especially in the first trimester, decreased preeclampsia and GDM risks, while vitamin D deficiency in pregnancy increased GDM risk […]
- Autor: Monica A LutgendorfConjoined twins are rare, occurring in 1 in 250 000 live births, with cephalopagus twins reported in 1 in 3 000 000 live births. In […]
- Autor: Giacomo BriscaThe recent article by Decembrino et al. highlights the burden of RSV-related bronchiolitis admissions to Italian Neonatal Intensive Care Units (NICUs) during the 2021 season […]
- Autor: Pourya MashateganBACKGROUND: Nonketotic hyperglycinemia is a rare metabolic disorder caused by glycine accumulation due to defects in the glycine cleavage system. While severe metabolic disorders can […]
- Autor: Rhiannon LathamOBJECTIVE: Perinatal palliative care (PPC) offers holistic support to families of babies with life-limiting conditions, addressing emotional, psychological, and practical needs alongside ensuring dignity for […]
- Autor: Dawn GanoWith increased access to advanced prenatal neuroimaging and genetic testing, neurological disorders such as brain malformations, brain injuries, and genetic disorders, are increasingly being diagnosed […]
- Autor: Ibrahim SalihSirenomelia is a rare, lethal congenital anomaly characterized by caudal regression and lower limb fusion. The etiopathogenesis is multifactorial, with maternal glycemic dysregulation established as […]
- Autor: Martha Irene KartasuryaCONCLUSION: Vitamin D supplementation in pregnancy, especially in the first trimester, decreased preeclampsia and GDM risks, while vitamin D deficiency in pregnancy increased GDM risk […]
- Autor: Lily HauptmanNo abstract
- Autor: Giacomo BriscaThe recent article by Decembrino et al. highlights the burden of RSV-related bronchiolitis admissions to Italian Neonatal Intensive Care Units (NICUs) during the 2021 season […]
- Autor: Pourya MashateganBACKGROUND: Nonketotic hyperglycinemia is a rare metabolic disorder caused by glycine accumulation due to defects in the glycine cleavage system. While severe metabolic disorders can […]
- Autor: Mojca ŽeleznikCONCLUSIONS: Management of HLHS involves multidisciplinary approach with complex medical and ethical considerations, but the current literature lacks high-quality studies or consensus guidelines on ethical […]
- Autor: Yating ZuoCONCLUSION: Parents' experiences in NPC are shaped by profound emotional struggles and the presence or absence of empathic, informative, and respectful communication. Peer and professional […]
- Autor: Theresa ReischerObjectives Trisomy 13 (T13) and 18 (T18) are lethal chromosomal abnormalities. While the prognosis is generally poor, recent evidence suggests that some infants with T13 […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Monografie a odborné texty
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Odborné články a Projekty
Nově dostupný článek českých autorů, který vyšel v BMJ Palliative Care na téma Výzkumné priority v perinatální paliativní péči.
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.