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Nejnovější mezinárodní publikace o paliativní péči
- Autor: Penny O'BrienINTRODUCTION: Although Aboriginal and Torres Strait Islander peoples are increasingly living healthier and longer lives, they continue to experience a high prevalence and incidence of […]
- Autor: Jonathan BergmanGeriatric patients, defined as those over 65 years of age, account for about 65% to 70% of all encounters for urologists in general clinical practice. […]
- Autor: Thamar KroesCONCLUSIONS: This study describes treatment experience from the patient-proxy perspective. It highlights the importance of a provider setting attuned to EOL care needs. Adequate pain […]
- Autor: Camilla LykkeCONCLUSIONS: Our finding of a higher proportion of caregivers reporting good health compared with the general population is in keeping with other recent studies. However, […]
- Autor: Sruthi RanganathanCONCLUSIONS: Black, Southeast Asian or other Asian patients had decreased odds of receiving palliative treatment, while NHPI patients had greater odds of receiving palliative treatment, […]
- Autor: Mara VicenziniCONCLUSION: There is ample evidence that early and simultaneous access to palliative care ensures a better care pathway. Although it is not possible to standardise […]
- Autor: Pietro RefoloCONCLUSIONS: The divergence underscores the intricate complexity of navigating ethical, cultural, and professional considerations in EoL care. Effective communication serves as a cornerstone for respecting […]
- Autor: M RousianBACKGROUND: Patients with malignant hilar biliary obstruction typically present with painless jaundice. They commonly have perihilar cholangiocarcinoma (pCCA), but also intrahepatic cholangiocarcinoma, gallbladder cancer, and […]
- Autor: Takato NishinoCONCLUSION: There are no effective systemic treatments for solitary fibrous tumors, which can lead to poor outcomes. Individualized treatment approaches are necessary.
- Autor: Rita GiacamanINTRODUCTION: This paper explores how pain is conceptualized, defined, expressed and managed among Palestinians with advanced cancer living in the Israeli occupied West Bank of […]
- Autor: Virginia LeBaronCONCLUSION: Clinicians desired higher-level (i.e., less granular/detailed) views of complex sensing data with a "take home" message that can be quickly processed. Orienting clinicians to […]
- Autor: Naoki WadaCONCLUSION: BPS with uncontrolled bladder pain may be a functional somatic syndrome associated with alexithymia, and interventions such as psychosomatic medicine could be necessary from […]
- Autor: Jan-Niklas EckardtRisk stratification in acute myeloid leukemia (AML) is driven by genetics, yet patient age substantially influences therapeutic decisions. To evaluate how age alters the prognostic […]
- Autor: Bibek ShresthaCONCLUSION: This is the first reported case of xeroderma pigmentosa associated with spindle cell carcinoma of the lung and focal seizures. It underscores the importance […]
- Autor: Bal Krishna SubediCONCLUSION: Prompt recognition of paraneoplastic hypercalcemia in RCC facilitates timely intervention. This case demonstrates the value of comprehensive diagnostic evaluation and multidisciplinary management combining supportive […]
- Autor: Cuixia LiuCONCLUSION: Psychiatric nurses demonstrate limited awareness of palliative care, with a low percentage having received relevant training. However, there are a large number of long-term […]
- Autor: Pietro RefoloCONCLUSIONS: The divergence underscores the intricate complexity of navigating ethical, cultural, and professional considerations in EoL care. Effective communication serves as a cornerstone for respecting […]
- Autor: Anne van DriesscheCONCLUSION: Our review highlights essential aspects to consider when discussing illness and healthcare preferences with children at various developmental stages. However, our findings also underscore […]
- Autor: Jan-Niklas EckardtRisk stratification in acute myeloid leukemia (AML) is driven by genetics, yet patient age substantially influences therapeutic decisions. To evaluate how age alters the prognostic […]
- Autor: Jorge Alberto Ramos-GuerreroCONCLUSIONS: This study shows a regression in the level of PC development in Mexico through an updated analysis, highlighting the gaps that need to be […]
- Autor: Christina M LambChildren with complex care needs lack access to Specialized Pediatric Palliative care in Canada. At the same time, death is increasingly being handled in a […]
- Autor: Ana Inês Lourenço da CostaBackground: Caring for children in palliative care especially impacts healthcare professionals' personal and professional lives. Their emotional experience and needs are frequently forgotten. Healthcare professionals […]
- Autor: Hannah RiedyCONCLUSION: Pediatric GOC notes included most GOC components; however, number of components may not reflect the quality and depth of actual discussions. Future research should […]
- Autor: Mariagrazia BaroniCONCLUSION: This study offers an initial overview of music therapy in hospices across Italy and highlights critical questions regarding team integration, training standards, evaluation and […]
- Autor: Jan-Niklas EckardtRisk stratification in acute myeloid leukemia (AML) is driven by genetics, yet patient age substantially influences therapeutic decisions. To evaluate how age alters the prognostic […]
- Autor: Ana Inês Lourenço da CostaBackground: Caring for children in palliative care especially impacts healthcare professionals' personal and professional lives. Their emotional experience and needs are frequently forgotten. Healthcare professionals […]
- Autor: GBD 2019 Acute and Chronic Care CollaboratorsChronic care manages long-term, progressive conditions, while acute care addresses short-term conditions. Chronic conditions increasingly strain health systems, which are often unprepared for these demands. […]
- Autor: Kalei R J HosakaThe culture of medical training and contemporary medicine is largely influenced by "spaceship ethics," where healthcare professionals are taught to take "refuge in principles that […]
- Autor: Clarissa E SchilstraCONCLUSION: Participant feedback informed important changes to the survey design and content. Our findings highlight that engaging with people with lived experience is a critical […]
- Autor: Cosimo ChelazziPediatric palliative care (PPC) is an essential component of holistic care for children with cancer, addressing the physical, emotional, psychosocial and existential needs of children […]
- Autor: Julia DowningBackground: The demand for children's palliative care is increasingly urgent, with over 21 million children worldwide needing access, yet only 5-10% currently receiving it. Mapping […]
- Autor: Aqsa KhanAdvance care planning (ACP) involves longitudinal communication between the patient and physician to explore the patient's wishes and goals while relaying accurate diagnostic and prognostic […]
- Autor: Ana Inês Lourenço da CostaBackground: Caring for children in palliative care especially impacts healthcare professionals' personal and professional lives. Their emotional experience and needs are frequently forgotten. Healthcare professionals […]
- Autor: Katarzyna Anna UrbańskaIntroduction: Nurses and midwives caring for newborns with lethal defects experience significant emotional stress. Understanding coping strategies and the factors influencing stress is crucial for […]
- Autor: Prashanth MurthyObjectiveTo compare the length of hospitalization for moderate and late preterm infants (MLPIs; 32^(0/7)-36^(6/7) weeks gestation) born at tertiary care (level III) perinatal centers versus […]
- Dobbs-driven expansion of perinatal palliative care: a scoping review of the evidence and its limitsAutor: Abigail B WilpersAs abortion care restrictions increase, a growing population is continuing pregnancies complicated by life-limiting fetal conditions, making it more critical than ever to evaluate the […]
- Autor: Liyan LuoCONCLUSIONS: This study is the first to perform a comprehensive bibliometric analysis of publications on telemedicine in newborns and NICUs. In the previous 20 years, […]
- Autor: Katarina Maciel AbathCONCLUSION: Palliative extubation was mostly performed in infants diagnosed with complex chronic conditions and severe and irreversible diseases, all of whom were referred to other […]
- Autor: Franca BeniniCONCLUSIONS: This remote teaching module effectively enhanced residents'knowledge and skills in PM and PPC. Although it was effective in terms of education and satisfaction, it […]
- Autor: Mika HirataCONCLUSIONS: This scoping review is the first comprehensive effort to map existing tools on pediatric cancer-related pain assessment tools for infants, children, and adolescents aged
- Autor: Ana Inês Lourenço da CostaBackground: Caring for children in palliative care especially impacts healthcare professionals' personal and professional lives. Their emotional experience and needs are frequently forgotten. Healthcare professionals […]
- Autor: Katarzyna Anna UrbańskaIntroduction: Nurses and midwives caring for newborns with lethal defects experience significant emotional stress. Understanding coping strategies and the factors influencing stress is crucial for […]
- Dobbs-driven expansion of perinatal palliative care: a scoping review of the evidence and its limitsAutor: Abigail B WilpersAs abortion care restrictions increase, a growing population is continuing pregnancies complicated by life-limiting fetal conditions, making it more critical than ever to evaluate the […]
- Autor: Liyan LuoCONCLUSIONS: This study is the first to perform a comprehensive bibliometric analysis of publications on telemedicine in newborns and NICUs. In the previous 20 years, […]
- Autor: Katarina Maciel AbathCONCLUSION: Palliative extubation was mostly performed in infants diagnosed with complex chronic conditions and severe and irreversible diseases, all of whom were referred to other […]
- Autor: Franca BeniniCONCLUSIONS: This remote teaching module effectively enhanced residents'knowledge and skills in PM and PPC. Although it was effective in terms of education and satisfaction, it […]
- Autor: Mika HirataCONCLUSIONS: This scoping review is the first comprehensive effort to map existing tools on pediatric cancer-related pain assessment tools for infants, children, and adolescents aged
- Autor: Maria DampsCONCLUSIONS: The guidelines implemented in the study centers facilitated decision-making regarding the discontinuation of FT. The protocol was most frequently applied to newborns and children […]
IMPACCT
Improving Palliative, Aged and Chronic Care through Clinical Research and Translation
KNIHY
Zajímavé monografie a odborné texty na téma dětská paliativní péče
Druhé aktualizované vydání, faktická řešení všech obvyklých problémů v klinické praxi, kterým každodenně čelí profesionálové pečující o umírající děti s nejrůznějšími diagnózami a jejich rodiny.
Autor knihy je britský pediatr a paliatr s mnohaletou zkušeností s péčí o umírající děti na celém světě včetně rozvojových zemí. Druhé vydání publikace je doplněno o tři nové kapitoly, MUDr. Lucie Hrdličkové a MUDr. Zuzany Staníčkové, které jsou zaměřené na specifika perinatální paliativní péče, nemocniční paliativní péče a plánování péče.
Kniha nabízí praktická řešení všech obvyklých problémů v poskytování dětské paliativní péče, kterým čelí profesionálové pečující o umírající děti a jejich rodiny v každodenní klinické praxi, věnuje se i komunikaci závažných zpráv, pomoci rodinám v těžkých situacích, podpoře při řešení etických a spirituálních otázek a možnostem podpory truchlících rodičů.
PUBLIKACE
Zprávy z projektů nebo články v indexovaných časopisech s recenzním řízením
Přinášíme závěrečnou zprávu projektu, v rámci kterého jsme mapovali současnou situaci v oblasti perinatální paliativní péče v ČR, včetně identifikace překážek v dalším rozvoji této oblasti.